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T O P I C    R E V I E W
Roadrunne98 Posted - May 15 2019 : 11:11:50 AM
Does putting the 02 level up help with being sob and making you function better walking and doing odds and ends? I am stage 4, and walking with the walker and with 02 I still get sob just walking to the bathroom and back to the bed during the night. Also standing in the kitchen doing things on the counter I have to sit down every so often or tell my husband to get this, get that. I hate that. He works hard in the heat and then I have to ask him for help. I know he doesn’t like it , especially if he just gets comfortable. I put it up to 2 1/2 yesterday. But why did my one doctor that I loved who died say, “ 2 or 5 it doesn’t matter”. I thing it’s the amt. of space that the 02 can go he meant if makes no difference. If 2 1/2 doesn’t do the trick today, can I put it up to 3?
13   L A T E S T    R E P L I E S    (Newest First)
Sandy9s Posted - May 28 2019 : 7:33:44 PM
My 02 is set at 2-1/2 most of the time. And most of the time my SATS stay in the 90's when I'm not doing much. But when I take a shower, I'm too lazy to turn up the 02 to probably 4. So that, after my shower when I sit on the edge of the bed, my SATS are about 76 or 79 or 81. They go up within a minute or two and I feel none the worse for wear. BUT I do think it would be better for my brain if I turned up the 02 before my shower and then turned it down again afterwards.

It's not only the shower which causes SATS to fall.......everything will do it -- cooking, walking, changing clothes, etc. etc.

But I "do nothing" more often than I "do something." That's why I keep the 02 at 2-1/2.

May be I should "up" it to 3 all the time.........

Everyone is different -- and everyone has to decide what Liter to use (after talking to their Dr. about it). My Doctor doesn't say much when I tell him what I do with my 02 numbers......he knows he doesn't live in my body!



rjh-spokane Posted - May 27 2019 : 02:35:37 AM
i'm glad you found that and you reminded all of us about what can happen. I have had this happen before and like you I tend to forget about it. Thanks for reminding me.
MDC Posted - May 26 2019 : 09:07:36 AM
Glad you solved that!! But I still up my 02 during activity.

God Bless,
Mike
Roadrunne98 Posted - May 18 2019 : 1:05:06 PM
This morning I got up and changed all my tubing and the amt. of 02 coming out of the nasal passage was like night and day. It was coming thru before the change , but not as strong and forceful as after changing them. I did not find any cracks this time in the tubing like I did once before either. I will beware of that again. Check yours also. Now when I go from b/r to bathroom, it was at 91 when I returned, not 79
jmrommes Posted - May 16 2019 : 8:25:23 PM
Roadrunner, you lose lung function every year, just like everyone else. So every year, even though you stay stable relative to everyone else, you still blow less each year, and as that happens, your need to O2 generally increases. The only people I know who've been able to stave that off are people who get themselves in the very best shape they can by working out every day with both aerobic exercise and lots of weight/resistance training.
tsainta Posted - May 16 2019 : 7:42:10 PM
The increased oxygen dependency idea has been debunked over and over. If you have COPD, your lung function will deteriorate over time and you will need increasing amounts of oxygen to function. Go with the flow. Let your body tell you what it needs. Or--keep yourself in a state of continuing, and unnecessary, suffering.
sslei Posted - May 16 2019 : 3:53:35 PM
Some people believe that to be the case , the more you use ,the more you have to use, others say that is not true at all. I do not know for sure, but at this point I do not think by putting it up some for exertion causes any extra need, try breathing through you nose and doing pursed lip breathing twice as long ,when you are walking or doing a little extra, mine drops some also. I am just now learning to do that I have always had a stuffy nose and could not figure out how to inhale through my nose. I think if you do it quite often you will see some improvement.
Sandy L.
Roadrunne98 Posted - May 16 2019 : 3:38:54 PM
I don’t like to increase the flow because someone said you will have to always have it higher if you start raising it.
tsainta Posted - May 16 2019 : 1:39:30 PM
I don't understand why you're hesitant to increase your O2 flow.
jmrommes Posted - May 16 2019 : 08:41:27 AM
Chronically low O2 sats lead to right heart failure and brain damage. What we really don't know is what the cumulative effect of situations like yours creates. Your sats drop really low, but you're able to bring them back up in a couple of minutes. We just don't know whether that all adds up eventually and there may be no answer that's definitive for everyone. My guess is that it's pretty individual in reality. We don't have a lot of facts for this decision. You'll just need to decide how you're going to do things and then do them. Wish I had more facts for you.......
Roadrunne98 Posted - May 16 2019 : 08:03:09 AM
My 02 is good till I get up and walk then it goes down to even 79, 81,85. Just getting up during the night, my 02 is 96 sometimes before I get out of bed, I walk with my walker even and come back , sit down on the bedside and it reads 79, 81, 85. Always below the 88 . So I sit and pulse lip breathe until it goes back to at least 90. But does this warrant putting it up to 2 1/2. It does the same at 2. When I am sitting, it is good, but lift my butt off the chair and walk a little , it plummets and I get sob. And I can’t be putting it up and down. I just don’t want to put it on 2 1/2 if the 2 does the same and I am not hurting my body any.
jmrommes Posted - May 15 2019 : 8:59:38 PM
Here's where you need to use your oximeter. If your O2 sats are low, then by all means, turn the O2 up. That will definitely help. If your O2 sats are good and you're still sob, you need to slow down or stop what you're doing and use your pursed lip breathing to help you get back to where you're not sob. Don't turn your O2 up unless your sats are low. If you do, it won't help and will just waste O2. There's also a very small chance that you could do some harm.
tsainta Posted - May 15 2019 : 12:04:12 PM
Try it. Only you can know if it helps.

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