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cyberbob9
Rookie

USA
5 Posts

Posted - Oct 06 2009 :  10:51:56 AM  Show Profile
I will stay brief and to the point.
I started to have a reduced breathing a couple of years ago and assumed it was because of being overweight. My wife gave me info about why I had peviously failed a breathing test years ago and the fact that it meant I had COPD. No help or suggestions from M.D.s despite X-RAY and my reporting the problem which I had been unable to identify properly.
I started my own research because of little medical help and found repeated references to NAC from forums on the web. I took one capsule inn the evening and woke up the next morning with a GREATLY improved breathing. It was VERY dramatic. Taking one capsule a day over the next few weeks enabled me to start singing again and also reduced the discomfort I felt in my broncial tubes. I take, once a day, NAC and the COPD contines to be held at bay. If I stop for a few days it starts to come back, seriously. I have never experienced side effects from taking NAC other than on the first night only my dreams were intense. I hope that this can help oher people who might have a similar problem. I am willing to testify in court to my experience as being true, dramatic and valid. I will continue to post this message occassionaly to help others in the future.

Bob Yavorski

robert yavorski

Dave-OH
Administrator

USA
4273 Posts

Posted - Oct 06 2009 :  11:30:32 AM  Show Profile
I just had this discussion with my doctor. NAC has a number of uses, but he does not feel that any of the oral Mucolytic agents are particularly effective. My allergist had prescribed one to me, and I had been taking Mucunix without success. NAC is used for Tylenol poisoning as a antidote in its oral form. As a inhaled drug it is effective when used during a bronch. "Acetylcysteine (rINN; pronounced /#716;śs#616;t#601;l#712;s#618;sti#720;n, #601;#716;s#603;t#601;l#712;s#618;sti#720;n/), also known as N-acetylcysteine or N-acetyl-L-cysteine (abbreviated NAC), is a pharmaceutical drug used mainly as a mucolytic agent and in the management of paracetamol (acetaminophen) overdose."

There are other uses, but it is a drug, and used improperly can cause more damage than it fixes. Getting a proper diagnosis of which lung disease is a matter of several tests, including a Pulmonary Function, CT Scan, 6 minute walk and others. This gives a Pulmonary Specialist a clear picture of the lungs and the disease they are treating.

Just an FYI, the lungs have no nerves, so there is no 'feeling in the bronchial tubes" And at this time, you do not seem to have a diagnosis, but your view of what you think you have. If you ever post this message again on this board, you will be banned. Your experience is that of one without any medical support and as such is dangerous.




Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info


My Site: http://lungresources.com
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Casey-CA
Senior Member

USA
782 Posts

Posted - Oct 06 2009 :  4:39:27 PM  Show Profile
Well done Dave. Something smells fishy here, but if indeed he does have COPD, he should
see a pulmonologist and have a real PFT test and start reading the forum.
Maybe then he will have some questions and learn how to live with COPD.

Casey formerly majseventh
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PennyPA
Contributing Member

USA
5913 Posts

Posted - Oct 06 2009 :  5:16:53 PM  Show Profile
Actually, if he had bronchitis (excessive mucous production), the NAC might help keep it at bay. It doesn't sound like he actually had the chronic bronchitis that falls under the copd umbrella.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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CarolCA
Contributing Member

USA
3366 Posts

Posted - Oct 06 2009 :  5:57:37 PM  Show Profile
There are a number of people that use NAC to reduce mucous but it takes a very long time before anyone sees any results. It made me sick to my stomach. My understanding is that it is an ammino acid and is very safe and really doesn't fall under the drug category anymore than a Ginger capsule would or fish oil or a vitamin but in any case no one should take anything without first discussing it with their doctor. You can get into all kinds of problems with anything natural or not depending on what your condition is and what other medications you take.
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jody25
Member

USA
37 Posts

Posted - Oct 07 2009 :  11:42:20 AM  Show Profile
I have difficulty with phlegm and find that the usual mucolytics help not at all..mucomist makes me cough till I'm breathless with no production, etc.

I like the homeopathics...in particular spongia tosta is very helpful.
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Dave-OH
Administrator

USA
4273 Posts

Posted - Oct 07 2009 :  12:09:34 PM  Show Profile
Jody, unlike the original poster, your comments about what you do is acceptable. I have no idea what it is that you use, and really do not care. You state it is helpful, and that is a fair endorsement for a product you use. To say something is a cure or a wonder drug is not acceptable. We all know that what works for one, does not always work for the next patient. And without the benefit of before and after diagnostic testing (PFT & CT Scan), there is no way to document anything but a persons feelings.

I wish you luck, and thank you for sharing.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info


My Site: http://lungresources.com
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Railbuggy
Member

USA
31 Posts

Posted - Oct 07 2009 :  2:42:40 PM  Show Profile
My Pulmonary Doc put me on foradil aerolizer and atrovent that seem to work better.I belive my bronchitis is in remission since I quit cigerettes june 30th,09.I dont belive my Emphysema will ever get better.Im not ready to cash in yet,but I have no fear of being the shootest if things go south.2

And the beat goes on.
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crazy81947
Member

USA
58 Posts

Posted - Oct 09 2009 :  3:39:39 PM  Show Profile
The internet is a wonderful tool - the snake oil salesmen were on the endangered species list now they have multiplied like rabid rabbits, offering cures for everything from hair loss to herpies - the more things change the more they stay the same..........buyer beware

MikeM
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cyberbob9
Rookie

USA
5 Posts

Posted - Oct 10 2009 :  09:56:18 AM  Show Profile
I apologise for telling the truth. Obviously the purpose here is to bury the truth and not discuss treatment. What I said from personal experience is true. If you search the web you will find others who also had their COPD symptoms lessened. To me that is the same as cured. If you choose to deny your own experience, do so, but do not tell me what I have experienced as fake, untrue or otherwise. I have had tests which revealed COPD, but doctors would not verify in spite of the outcome of those same tests. People don't really want to know the truth anyway. They are just trying to justify non-action. So what we have here, people, is a conrol of content and not an open discussion of problem or resolutions. I guess then this is really just another AMA site set up to subvert and vilify truth in order to sell more drugs with sid eeffects. Go to it!

robert yavorski
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cyberbob9
Rookie

USA
5 Posts

Posted - Oct 10 2009 :  09:58:35 AM  Show Profile
And by the way, I am therefore successfully living with COPD. That's the whole freakin' idea of this post. What did you think it was?

robert yavorski
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cyberbob9
Rookie

USA
5 Posts

Posted - Oct 10 2009 :  10:23:53 AM  Show Profile
If NAC was a drug it would be sold AS a drug in a drug store. ??? What personal experience have YOU had with NAC? Not what your doctor told you he THINKS it is? Wow... great experience! Answer this question. Are you a doctor or working for the AMA or drug companies? What is your real name? I work to help people who may have similar problems and are looking for a solution as I was doing over two years ago. Now in sharing the same info that helped me...I find criticism. Something isn't right here.
!

robert yavorski
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Carolyn-Mi
Administrator

608 Posts

Posted - Oct 10 2009 :  11:10:00 AM  Show Profile
quote:
Originally posted by cyberbob9

If NAC was a drug it would be sold AS a drug in a drug store. ??? What personal experience have YOU had with NAC? Not what your doctor told you he THINKS it is? Wow... great experience! Answer this question. Are you a doctor or working for the AMA or drug companies? What is your real name? I work to help people who may have similar problems and are looking for a solution as I was doing over two years ago. Now in sharing the same info that helped me...I find criticism. Something isn't right here.
!



You have left out much information in your original post. You stated you had failed a test years ago. Were you ill at the time? Healthy folks with in infection can fail breathing tests and once they have the infection cleared up, they are ok. They would NOT tell you that you had Copd if you were ill at that time. If they thought this, another test would need to be done several months later.

Have they ever tested you again? And if so what meds for COPD are you on?

Being overweight will affect your breathing test as well, it is restrictive though instead of obstructive. Losing the weight will help correct that part of your problem.

You stated that NAC helped you overnight. No one denies that NAC can help some folks with mucous and phelgm, but they do not claim it is a cure all.

We are not saying that it doesn't help you, and that you didn't notice results overnight. But we don't have all the information that would help a person brand new to this decide what they can do, and that makes it very misleading.

So please share all the information including recent tests and firm diagnosis. It is so very hard to know what you have and are doing with only partial information.

COPD Support
http://www.copd-support.com
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Dave-OH
Administrator

USA
4273 Posts

Posted - Oct 10 2009 :  11:12:35 AM  Show Profile
You do not have diagnosed COPD by a medical professional, per your post. The doctor I discussed this with for myself a couple of weeks before is the Chairman of the our University Pulmonary Division who trained at National Jewish. We where discussing several drugs in the same category. NAC for inhalation is sold as Mycomyst, and is often used in bronchoscopies for clearing mucus. NAC is sold both as an OTC drug, nor requiring an Rx. Orally there is one lung disease it is used for ILD. You find criticism because we do not buy into wonder cures. We all suffer from the diseases, and have learned that there is not wonder care for COPD. There are ways to manage the disease and live a good life. We also have learned that working with a doctor that you can work with is critical to disease management. And I am a Director of the group who sponsors this site, a Non Profit called COPD Support. I have a nasty lung disease know to produce excess mucus called Bronchectasis, so I research all options and discuss them with my doctors.

Mucomyst Description

Mucomyst brand of acetylcysteine is for inhalation (mucolytic agent) or oral administration (acetaminophen antidote), and available as sterile, unpreserved solutions (not for injection). The solutions contain 20% (Mucomyst-20) or 10% (Mucomyst-10) acetylcysteine, with edetate disodium in purified water. Sodium hydroxide is added to adjust pH to 7. Acetylcysteine is the N-acetyl derivative of the naturally-occurring amino acid, cysteine. The compound is a white crystalline powder with the molecular formula C5H9NO3S, a molecular weight of 163.2, and chemical name of N-acetyl-L-cysteine.

http://en.wikipedia.org/wiki/Acetylcysteine

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info


My Site: http://lungresources.com
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Casey-CA
Senior Member

USA
782 Posts

Posted - Oct 10 2009 :  8:23:58 PM  Show Profile
Cyber Bob,
We all have COPD here and discussion is frank and open. I have had 3 PFT tests which show that I have COPD and that my FEV1 is 47%. What is your FEV1 from your PFT test?
Do you still smoke?
Do you exercise?
Are you using oxygen therapy?
Do you get short of breath and how far can you walk?
What medication have you tried for your COPD besides something for mucas?
Do you really think you are cured? If so, then you wouldn't need anything anymore, so why are you still taking the NAC? That is because it isn't a cure, but maybe just helping with a symptom and not with every symptom of COPD.
We learn here how to live with COPD and how to stop it in its tracks, but it is not reversible, which would be a real cure. The only real cure is a lung transplant.
Do you have a stake in the company and product you are pushing here and elsewhere?

Casey formerly majseventh
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jahennes
Member

USA
36 Posts

Posted - Oct 11 2009 :  01:07:13 AM  Show Profile
quote:
Originally posted by CarolCA

There are a number of people that use NAC to reduce mucous but it takes a very long time before anyone sees any results. It made me sick to my stomach. My understanding is that it is an ammino acid and is very safe and really doesn't fall under the drug category anymore than a Ginger capsule would or fish oil or a vitamin but in any case no one should take anything without first discussing it with their doctor. You can get into all kinds of problems with anything natural or not depending on what your condition is and what other medications you take.



Carol I take an N-Acetyl-L-Cysteine capsule every day. Have for a couple of months. I have read some good things about it ..... even on mice.
I have CHF also so this article bostered my confidence in this.

Be blessed and keep up the good work,

Jack

http://cpt.sagepub.com/cgi/content/abstract/14/2/134
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Dave-OH
Administrator

USA
4273 Posts

Posted - Oct 11 2009 :  01:11:27 AM  Show Profile
Again, that is not for COPD. I am glad it works for you.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info


My Site: http://lungresources.com
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PennyPA
Contributing Member

USA
5913 Posts

Posted - Oct 11 2009 :  10:38:08 AM  Show Profile
Dave, quite a few people on the boards take NAC for excess mucous. No, it's not a cure but it does help them keep the mucous thin so they are more able to bring it up. It IS used for copd.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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Dave-OH
Administrator

USA
4273 Posts

Posted - Oct 11 2009 :  11:10:49 AM  Show Profile
And yet when I talk to my lung doctors about this group of drugs, they only recommend it in inhaled form for mucus relief, and usually only in a hospital environment. I had this discussion with my Allergists and Pulmonologist at UC in the last few weeks about me, and I have a problem with mucus.

People have their own anecdotal evidence that a drug may work for them. The level of proof for an FDA approval to use a drug for a particular purpose is much higher. NAC has been proven to work for Tylenol (acetaminophen) poisoning, and as a inhaled drug for mucus thinning. Doctors from time to time may also test a drug for possible uses by prescribing it to patients and recording the success or failure using scientific principles. I can not find such evidence of either for oral NAC. I did find evidence that NAC is being tested in CF patients to clear the mucus in the intestinal tract. Of course, like inhaled NAC, the drug is directly in contact with the area being treated.

Individuals may feel that it is effective for helping treat problems. Since it is available without a prescription, people are free to try in and record their own success or failure.

One thing I found is that scientists believe it works as an inhaled drug by having the body create more less viscous (thinner) mucus that makes it easier to clear the thicker mucus. To do that it must act as an irritant. In fact inhaled hyper-tonic saline will do the same thing, without the smell of Mucomyst.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info


My Site: http://lungresources.com
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CarolCA
Contributing Member

USA
3366 Posts

Posted - Oct 11 2009 :  5:50:58 PM  Show Profile
Having used Mucomyst in the hospital and saline the Mucomyst is far more potent but the risk of bronchospasm is signficant enough that it is not used often at my hospital. That said there are others on other forums that it has been given to in the hospital in liquid form and it has been effective. Mucous production is for the protection of our membranes and linings so totally cutting down is not really good either but has someone that produces a lot of mucous it is a pain to deal with. I find the saline helps me a lot at home. People that produce less mucous from gastric reflux have more severe esophageal erosion s an example. Much of the mucous from gastric reflux is confused with lung mucous. Many people feel that NAC does help them keep mucous in the lungs under control but it takes a long time to achieve this. It is not a one shot wonder or cure.
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thomwest2634
Member

USA
109 Posts

Posted - Oct 16 2009 :  6:59:18 PM  Show Profile
Carol, I'm not familiar with much of what I'm reading, but your reference to the saline interests me. Are there specifics as to what I should actually look for and is it OTC? Thanks. thom (seems I read somewhere that it could be used in a nebulizer. I'm using Albuteral and Impotropium as I'm typing this.)
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thomwest2634
Member

USA
109 Posts

Posted - Oct 16 2009 :  7:00:38 PM  Show Profile
P.S. anybody. I did finally get copies of the last two PFT tests (in the mail today) and have no idea what to look for - is there a good page on the 'net which might explain some of the details? Thanks again.
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thomwest2634
Member

USA
109 Posts

Posted - Oct 16 2009 :  7:16:17 PM  Show Profile
I thought I had posted a couple of messsges a few minutes ago now I cant find them. Oy. I was asking for some info about saline, what kind and where.......... Now I have a different question. I got my latest PFT today in the mail and the FEVl analysis is there but I don't know how to read it,. Anybody know of a site where there might be some education for me in that area? Thanks. Thom (Is this "off topic"? My apologies, I'll look at a "new topic" maybe.
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CarolCA
Contributing Member

USA
3366 Posts

Posted - Oct 16 2009 :  8:50:40 PM  Show Profile
Start a new thread for this. You should have a summary conclusion with it from a pulmonologist that has interpreted it. They can get very complicated. You can "google" and learn some but don't expect to be an expert. Best to start a new thread for help from forum members.
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jmrommes
Contributing Member

2032 Posts

Posted - Oct 16 2009 :  9:16:08 PM  Show Profile
Thom, here are a couple of sites that will get you started in understanidng the PFT results. It is complicated, and there are nuances many (including docs) don't understand, but this will help.

http://jan.ucc.nau.edu/~daa/lecture/pft.htm

http://www.gp-training.net/protocol/respiratory/copd/spirometry.htm

Jean

Exercise not only lets me live, it enables me to have a life.
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thomwest2634
Member

USA
109 Posts

Posted - Oct 17 2009 :  10:24:15 AM  Show Profile
Thanks so much Jean, and the rest of you guys. I'll start digging. Absolutely NO information from the Dr. I think he and I may split the blanket here. Thom
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thomwest2634
Member

USA
109 Posts

Posted - Oct 19 2009 :  1:10:30 PM  Show Profile
Almost a catastrophe. Usually when I refill the humidifier bottle on the liquid cylinder I use at night I do a "bubble test" to make sure that there is oxygen getting through the line. Last night I did not. At 6 this morning I awoke (for the 7th time) and had the feeling that there was something amiss. I used the oximeter and found it at 82. I did the "bubble test" then and realized that there was no oxygen coming through, checked, and had put the bottle for the water on incorrectly and the oxygen had been leaking out into the room atmosphere. I switched over to the concentrator and in five minutes my sat was at 97. I'm lucky. I feel I'm fortunate and advise all to do the bubble test. Well, I'm old, and I forget things, I suppose. Thom
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little_weed
Member

United Kingdom
54 Posts

Posted - Oct 24 2009 :  09:54:14 AM  Show Profile
Hi Jody25,
I like the sound of giving Spongia tosta a bash - I cannot shift cough/mucous from a cold a couple of weeks ago (no infection)
I always seem to have problems with a cough - my other half reckons it's 'cause I talk too much!!! lol
What dose do you take??

Edited by - little_weed on Oct 24 2009 09:54:59 AM
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thomwest2634
Member

USA
109 Posts

Posted - Oct 24 2009 :  09:57:44 AM  Show Profile
Little Weed, I think I got your message to Jody on my post. You may want to redirect it. Thanks anyway, and stop talking so much. You'r using up all the air in here. Thom
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little_weed
Member

United Kingdom
54 Posts

Posted - Oct 24 2009 :  10:56:46 AM  Show Profile
quote:
Originally posted by jody25

I have difficulty with phlegm and find that the usual mucolytics help not at all..mucomist makes me cough till I'm breathless with no production, etc.

I like the homeopathics...in particular spongia tosta is very helpful.



Hi Jody25,
Thom's just told me off, in the nicest possible way!
I should have replied specifically to your post.
I'm a newbie, what do you expect!
So, here we go.
I like the sound of giving Spongia tosta a bash - I cannot shift cough/mucous from a cold a couple of weeks ago (no infection)
I always seem to have problems with a cough - my other half reckons it's 'cause I talk too much!!! lol

What dose do you take??
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little_weed
Member

United Kingdom
54 Posts

Posted - Oct 24 2009 :  10:59:53 AM  Show Profile
quote:
Originally posted by thomwest2634

Little Weed, I think I got your message to Jody on my post. You may want to redirect it. Thanks anyway, and stop talking so much. You'r using up all the air in here. Thom



I shall sit in the naughty corner.
Sorry, Thom!

Get well soon,
xxx
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Casey-CA
Senior Member

USA
782 Posts

Posted - Oct 24 2009 :  5:55:05 PM  Show Profile
Little Weed,
Do you have a real name we can call you by? LOL
Also, you responded in the right place. Thom was wrong to say you talked too much and responded in the wrong place.
What medication do you take? Atrovent might help you with the mucas. It is an inhaler and I don't recall you saying that the doctor put you on any inhalers. Did they diagnose you with chronic bronchitis? That is COPD also.

Casey formerly majseventh
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little_weed
Member

United Kingdom
54 Posts

Posted - Oct 24 2009 :  6:46:50 PM  Show Profile
Sorry, I keep meaning to put my name at the end of my posts! It's Joyce, Joycie or Jo. Friends call me mostly Joycie.

I have recently been diagnosed with emphysema, but it has taken 6 months to see a pulmonary consultant (specialist) have all the PFT's; X-rays and CT Scans. This week I got to see the consultant to get all the info he was prepared to give me (I had already got a copy of the PFT results and a letter saying the emphysema was "significant")

My FEV1(L) is 84% of predicted, a slight improvement on my initial spirometry at the doc's office, my FVC(L) ia 121.94% predicted and mu FEV1/FVC(%)is 74.96. BUT my Diffusion/Gas transfer results are BAD!!! Tlco(Hb)33.54% predicted; Tlco 33.85% predicted Va 100.83% predicted; Kco(Hb) 33.27% and Kco 33.57% predicted.

The consultant told me this week that I have lost two-thirds of my lungs, showed me the CT images, and said that he is referring me to a specialist hospital and recommending LVRS. Shock, horror!

I was as fit as a fiddle until last Christmas when I came down with some really awful flu bug, which went on my chest and I couldn't get rid of it.

I'm one of these people who has to know the full picture on EVERYTHING! I've spent every night researching COPD, and emphysema.

I use two inhalers: Spiriva first thing in the morning, and take Salamol (Salbutamol sulphate) 4 x daily plus as I need it. I keep an emergency supply of antibiotics and prednisolone.

Two days ago, I had an endoscopy and was diagnosed with a hiatus hernia, oesophagitis, and gastritis . . . I'm just wondering what the next thing will be . . . they did take some biopsies . . .

I'm female, 54, underweight, with a body mass index of 17, 5' 7" weighing 53 kilos!
My grandfather had emphysema, but I tested neg. for A1 Antitripsin. (if I've spelt that right!)

Are you sorry you asked? lol

I really am desperate for some help. To be honest I am worried for my partner more than for me.

Thanks,
Joycie
xxx

Edited by - little_weed on Oct 24 2009 6:48:59 PM
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thomwest2634
Member

USA
109 Posts

Posted - Oct 24 2009 :  6:51:21 PM  Show Profile
Little Weed, I'm happy you didn't take offense at my jesting reply. If you'll remember, your family told you you talk too much, so I was just teasing. If anyone wanted to reprimand me it should be you and I had the common sense to know that you wouldn't. I hope you got a better reply from the intended recipient of your message than I got from mine. Blessed be. Thom
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thomwest2634
Member

USA
109 Posts

Posted - Oct 24 2009 :  6:55:31 PM  Show Profile
majseventh - Little Weed wrote an email and accidentally sent it to my email address. In his text he referred to the intended recipient as "Jody". The Email was misdirected and he sent it to the wrong person (albeit by mistake) although it was certainly well received. . I did not tell him he had posted to the wrong place.
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little_weed
Member

United Kingdom
54 Posts

Posted - Oct 24 2009 :  7:18:34 PM  Show Profile
Thom,
Can I leave the naughty corner now . . . please . . . can I? . . .

I never take offense at anything, Thom, as I'm sure you know.

But I DO like a good telling off once in a while. lol

love
Joycie
xxx
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thomwest2634
Member

USA
109 Posts

Posted - Oct 24 2009 :  8:05:57 PM  Show Profile
Little weed - I had no idea you were a lady. I just hadn't kept my eyes open. I've never met a lady weed. See what happens when you can't breathe? Everything goes. Something tells me you're doing fine, m'friend. Hang in there. Thom
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Casey-CA
Senior Member

USA
782 Posts

Posted - Oct 24 2009 :  8:58:19 PM  Show Profile
Joycie,
I am a 56 year old female with a family history of emphysema also. But, I also tested negative for Alpha 1.
I wasn't really surprised when I found out about 3 years ago, but it still is a shock that you will get over. We all go thru the denial and depression part of the diagnosis, but like you we are here to learn and support one another. It is a good thing to take charge of yourself and your disease.
I use Spiriva, Serevent and Azmacort. I only use the Albuterol when I am in trouble or having an asthma attack.
I intend to live a very very long time and breathe as well as I can. I never forget I have COPD each day, but I do live my life every day too!

Casey formerly majseventh
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Casey-CA
Senior Member

USA
782 Posts

Posted - Oct 24 2009 :  8:59:56 PM  Show Profile
Thom, No worries. But, thanks for clarifying the mixup. Hope you are well today.

Casey formerly majseventh
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jmrommes
Contributing Member

2032 Posts

Posted - Oct 24 2009 :  9:35:12 PM  Show Profile
Joycie,

A couple of observations: first, did you smoke, ever? If you did, then even though you felt "fit as a fiddle" until last Christmas, you have been developing this COPD for a long time. If you didn't, then maybe you were just fine, but your experience is very typical for someone with COPD....you're fine until all of a sudden something lays you low and then you find you can't even get up to a sitting position without help. Most of us have been developing this for years prior to diagnosis. I know I had this in the mid-80's, well before my official diagnosis in 2000.

Second, don't let the possibility of LVRS scare you too much, and be glad your doc has the knowledge and foresight to suggest it. At the least, get tested for it...if nothing else, you will learn a great deal more about your particular case of COPD. One thing I've learned is that no two are alike and the more you know the better off you are. I hope Penny pops in, because she's had the procedure and has had a good outcome. Don't let anything scare you away from learning more.....

Jean

Exercise not only lets me live, it enables me to have a life.
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thomwest2634
Member

USA
109 Posts

Posted - Oct 24 2009 :  9:51:27 PM  Show Profile
Joycie, I'm a 75 year old man in Fl., and the LVRS sounds like it's done wonders for some but I wonder if I'm past the stage where it would really benefit me for any more time than I would normally have left anyway. It's reached the point where I can hardly go 5 minutes without oxygen and I'm VERY pleased with my liquid fill portable - I eat well, don't smoke or drink, work out in the yard - but - I do very little actual walking other than that required in the yard. Do you (or anyone else) have any really small suggestions? I really don't like the idea of not making any long term plans. Because I'm old, yes, because I'm ill, no. Poor old thang.
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