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majseventh
Senior Member
USA
414 Posts |
 Posted - Jun 24 2010 : 4:39:26 PM
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Keep pushing them for tests and more important the results Shady. I hope you get to the
bottom of everything and feel better. |
CaseyCA |
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Halibut
Member
23 Posts |
Posted - Jun 24 2010 : 5:39:11 PM
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| Are you off the weed yet? |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 06 2010 : 10:25:59 AM
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| got some results back n just left me rather confused as to what is wrong with me,my chest xray is normal my respirometry is fev1 of 1.4 an fvc of 3.69 ratio 74% dont know what any of that means.they reckon my abdominal examination was normal even tho its quite obviously distended n has been a long time now,also the chest xray n ecg were normal.i have n exercise test n lung function tests coming up,they are going to put me on n long acting broncho dilator n refer me for physio something bout breathing control n breathing dysregulation which has left me more confused then ever. |
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Dave-OH
Administrator
USA
1226 Posts |
Posted - Jul 06 2010 : 11:56:18 AM
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| Did you get a FEV1 % in the study. My guess is you are above 40% on the FEV1 %. |
Dave, Forum Administrator
COPD Support, Inc.
http://www.copd-support.com/
Your source for peer support and COPD Info |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 06 2010 : 12:21:10 PM
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| i dont know what any of those figures actually mean n what is wrong with me even just says in the lettter my respirometry is fev1 of 1.4 n fvc of 3.69 with a ratio of 74% dont know what fev or fvc mean |
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majseventh
Senior Member
USA
414 Posts |
Posted - Jul 06 2010 : 4:57:31 PM
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You said you still have lung function tests coming up? When?
What bronchodialator are they putting you on and when?
So, they have no explanation of the distention of your stomach? Are you over weight?
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CaseyCA |
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PennyPA
Contributing Member
USA
1564 Posts |
Posted - Jul 06 2010 : 5:26:53 PM
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I'm assuming the pft wasn't a complete pft in that it was probably only spirometry. What % is after the 1.4 on your FEV1 line?
Have they done any ctscans of your stomach? And, as Casey asked, just what do you weigh and your height, please. |
Penny's LVRS Blog
And Our Travel Blog After LVRS
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CarolCA
Contributing Member
USA
606 Posts |
Posted - Jul 06 2010 : 6:13:36 PM
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| If you have had this for 17 years it is obviously not terminal but it certainly can affect your breathing. They need to do a CT scan as Penny said of the abdominal area. I see you are getting a PFT on the 26th of this month so maybe that will help but it does seem that with as much distention as you talk about that something isn't right. |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 07 2010 : 04:00:27 AM
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| got exercise tests next monday n lung function on the 26th,dont know what broncho they are putting me on just mentions it in the results letter n the fev1 just says 1.4 they keep saying that ive learnt to breath wrong but this does not explain the distention which orignallly happened after i passed out. |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 07 2010 : 11:19:58 AM
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| theyve given me serevent accuhaler 50mcg my height is 1.65 n weight about 64kg or just under 10 stone not so over weight i should notice |
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Dave-OH
Administrator
USA
1226 Posts |
Posted - Jul 07 2010 : 12:45:17 PM
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I somehow lost my post in progress. OK. Expected FFEV1 for your height at age 55 would be 2.54, so you are at 55% or moderate COPD. For FVC, you are at 3.69% versus an expected of 2.99 liters or 123%.
FVC - Forced Vital Capacity - after the patient has taken in the deepest possible breath, this is the volume of air which can be forcibly and maximally exhaled out of the lungs until no more can be expired. FVC is usually expressed in units called liters. This PFT value is critically important in the diagnosis of obstructive and restrictive diseases.
FEV1 - Forced Expiratory Volume in One Second - this is the volume of air which can be forcibly exhaled from the lungs in the first second of a forced expiratory manuever. It is expressed as liters. This PFT value is critically important in the diagnosis of obstructive and restrictive diseases.
FEV1/FVC - FEV1 Percent (FEV1%) - This number is the ratio of FEV1 to FVC - it indicates what percentage of the total FVC was expelled from the lungs during the first second of forced exhalation - this number is called FEV1%, %FEV1 or FEV1/FVC ratio. This PFT value is critically important in the diagnosis of obstructive and restrictive diseases.
# Moderate
* FVC % of predicted: 40-59%
* FEV1 % of predicted: 40-59%
* FEV1/FVC % of predicted: 40-59%
You are moving a lot of air, but have moderate obstruction that effects your ability to move air quickly. Purse lip breathing or diaphragmatic breathing would help you not feel that breathing is not so stressed.
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Dave, Forum Administrator
COPD Support, Inc.
http://www.copd-support.com/
Your source for peer support and COPD Info |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 07 2010 : 2:30:26 PM
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| ok get the jist do breathe thru my mouth alot n at night especially n wake with a dry mouth lol |
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Dave-OH
Administrator
USA
1226 Posts |
Posted - Jul 07 2010 : 3:33:57 PM
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| Shady, I gave you the numbers for a female. For a male it is 45% of expected for FEV1. |
Dave, Forum Administrator
COPD Support, Inc.
http://www.copd-support.com/
Your source for peer support and COPD Info |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 07 2010 : 4:19:21 PM
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| mine says fev1 of 1.4 an fvc of 3.69 ratio 74% it doesnt say anything else so not sure what the 74% at the end means |
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Dave-OH
Administrator
USA
1226 Posts |
Posted - Jul 07 2010 : 5:08:47 PM
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| That is the ratio of FEV1 to FVC. But that does not add up as I get a much lower value. 3.69 is 100% for FVC for you. |
Dave, Forum Administrator
COPD Support, Inc.
http://www.copd-support.com/
Your source for peer support and COPD Info |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 08 2010 : 03:55:16 AM
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| is that good or bad |
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Dave-OH
Administrator
USA
1226 Posts |
Posted - Jul 08 2010 : 09:20:50 AM
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| It is fair. You can do well at a FEV1 of 45%. |
Dave, Forum Administrator
COPD Support, Inc.
http://www.copd-support.com/
Your source for peer support and COPD Info |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 08 2010 : 1:45:50 PM
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| starting to wonder if ive got emphysema or if its more n deep down emotional thing confused |
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Sandy07
Member
Canada
71 Posts |
Posted - Jul 08 2010 : 2:30:00 PM
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| If you find yourself breathing thru your mouth at night it might help to use nasal strips. (Breathrite) My nose plugs itself up for no reason. Membranes just swell I guess. Maybe allergies. Tried the strips the other night and it helped. |
Edited by - Sandy07 on Jul 08 2010 2:30:58 PM |
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majseventh
Senior Member
USA
414 Posts |
Posted - Jul 08 2010 : 6:02:58 PM
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When I quit smoking my nose stopped being stuffy. So, when you quit the pot you will breathe thru your nose better.
At a FEV1 of 45 you do have emphysema. It is not an emotional thing. If you accept it, quit the smokes and get proper meds and start a real exercise program, you will feel better.
I have a FEV1 of 47% so I know. |
CaseyCA |
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CarolCA
Contributing Member
USA
606 Posts |
Posted - Jul 08 2010 : 6:41:10 PM
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| Emotions can play a part in how all diseases affect you. In COPD when you are anxious and muscles tighten up it can affect you breathing as well as just plain anxiety can make SOB worse. Learn PLB and how to relax. Take a yoga class or read some books on relaxation or get a DVD. If your FEV1 is what has been said you definetly have it but you can keep it close to there with proper treatment, exercise, weight control,etc. |
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Dave-OH
Administrator
USA
1226 Posts |
Posted - Jul 08 2010 : 7:33:07 PM
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| I think that minimizing stress, especially the self induced kind is key to management of this disease. |
Dave, Forum Administrator
COPD Support, Inc.
http://www.copd-support.com/
Your source for peer support and COPD Info |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 09 2010 : 02:42:13 AM
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| doc n consultant are saying ive learnt wrong breathing n that im anxious but try to explain to them that its the difficulty breathing thats made me anxious in the first place,so far apart from the spirometry all the tests have been clear but i still have n exercise test n lung function. |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 12 2010 : 06:50:12 AM
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| got my exercise tests tomorrow morning |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 13 2010 : 3:40:50 PM
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| did the test managed to keep going thru the walking part but near enough as soon as i started running had to stop frightening really as in my teens i was one of the fastest 100m runners in the hole school |
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shady
Member
United Kingdom
71 Posts |
Posted - Jul 20 2010 : 12:11:37 PM
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| got lung function tests next monday hoping that means i'll finally get n understanding what is wrong with me,still waiting for the exercise test results but think lung function will be more important. |
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shady
Member
United Kingdom
71 Posts |
Posted - Aug 03 2010 : 12:24:35 PM
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| had results n not got emphysema at all now but they say i have breathing dysregulation n wanna send me for physio,they cant seem to explain the abdominal distention tho. |
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majseventh
Senior Member
USA
414 Posts |
Posted - Aug 03 2010 : 3:17:58 PM
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That is good news on the emphysema Shady. I just don't understand why they take their own sweet slow.... time to figure this out.
Keep pushing them and get to the bottom of it. Complain and complain more as the squeaky wheel gets the grease!
When do they have you scheduled next? |
CaseyCA |
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shady
Member
United Kingdom
71 Posts |
Posted - Aug 04 2010 : 4:47:53 PM
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| waiting to hear about the physio but my consultant said theres no need to see him again unless the need arises so pretty much back to square one as far as not knowing is concerned,but was reading about breathing dysregulation n had a bit about sufferers of extreme pain which at the time of the distention i was go thru my 1st ever bout of what i now know to be cluster headaches.it was perhaps the worst ever bout as it was not only very painful but i had no idea what they were,they lasted bout 2 or 3 weeks n ended with the collapse n waking with distention n breathing difficulty.since then ive had this endless struggle to find out whats wrong,ive heard everything from irritable bowel to my mental state,so far part from copd theres been no real explanation as to what happened but seems to be a link there with the dysregulation n extreme pain. |
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copd
