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CarolCA
Contributing Member

USA
3156 Posts

Posted - Apr 10 2013 :  4:58:02 PM  Show Profile  Reply with Quote
Well, good for you, James, that you happen to have that Plan D and were able to find it. I am sure that is helpful to people. It isn't available on any of the ones that I checked like AARP and Humana in my area and of course you have to wait till open enrollment to change Plan D. By then maybe more will cover it. However, like all things, some of my meds aren't covered by that Plan D so you have to take the good with the bad.
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Scout
Contributing Member

USA
1011 Posts

Posted - Apr 10 2013 :  4:58:14 PM  Show Profile  Reply with Quote
So BJo....you're liking this Tudorza ? Now you are not taking spiriva but taking this 2 times a day? My fev is lower than yours. Do you think it might give someone like me energy or better breathing? I just have not heard anything about this. Sam...you haven't tried this? Did it come out after Daliresp? I can't keep up!

Connie-AR
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Dave-OH
Administrator

USA
3380 Posts

Posted - Apr 10 2013 :  5:06:30 PM  Show Profile  Reply with Quote
srajhart is the hit and run poster. He posted and started this topic and then has not returned. We want you to share your experience with the drug.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
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BJoTX
Rookie

14 Posts

Posted - Apr 10 2013 :  6:27:15 PM  Show Profile  Reply with Quote
Penny - this was a previous post from him about finding it on a Medicare web site that listed some Part D plans available to residents of Chicago. Since our drugs are covered by BCBS/TX, we don't have to carry the extra plan so I've never checked into any of the sites.

[quote]Originally posted by JamesW-IL

I have discovered on Medicare web site a number of Part D Drug plans that are available to Chicago residents that cover Tudorza and Generic Lipitor. Very cheap!!! No need to order from Canada or elseware.
One plan is WellCare Classic (PDP) (S5967-154-0)

Things are to be used, not loved. People are to be loved, not used.
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BJoTX
Rookie

14 Posts

Posted - Apr 10 2013 :  6:40:47 PM  Show Profile  Reply with Quote
Connie - yes, I'm liking the Tudorza so far very much. I tried Spiriva when it first came out but it didn't do anything for me so I went back on my Atrovent. Counting before & after Spiriva, I've been on that for over 10 years. (Other classes tend to give me PVC's and other cardiac arrythemias.) Yes I take this 2X day followed by a puff of Flovent. My FEV1 is 30%. I'm certainly no bundle of energy but I'd say off hand that my level has increased maybe 20% - still a long way from normal but better than it was 8 days ago.
quote:
Originally posted by Scout

So BJo....you're liking this Tudorza ? Now you are not taking spiriva but taking this 2 times a day? My fev is lower than yours. Do you think it might give someone like me energy or better breathing? I just have not heard anything about this. Sam...you haven't tried this? Did it come out after Daliresp? I can't keep up!


Things are to be used, not loved. People are to be loved, not used.
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CarolCA
Contributing Member

USA
3156 Posts

Posted - Apr 10 2013 :  10:45:06 PM  Show Profile  Reply with Quote
So good to see a new drug helping people. There was a lot of discussion about why someone would take something 2x a day when they already had something you only had to take once so now we know, there is a reason. I already stopped taking it because it seemed to tighten me up.
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Sokcap48
Member

USA
338 Posts

Posted - Apr 11 2013 :  08:01:15 AM  Show Profile  Reply with Quote
Hi folks I looked it up on my regular insurance drug plan and it runs $50 per every 90 days more than my Advair or Spriva. BUT if it is really true you can stop taking both the net savings for me would be $80 per every 90 days. I have a Pulmo visit 3rd week in May I will ask him about it then.------- have any suggestions on questions let me know and I will write them down ( a few) and ask him. By the way looks like the hit and run accomplished his goal, cause it has started a discussion, good bad or indifferent. Thanks again Paul-Ut

Sokcap48
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PennyPA
Contributing Member

USA
4633 Posts

Posted - Apr 11 2013 :  09:27:11 AM  Show Profile  Reply with Quote
Why are people dropping the Advair?? Is Tudorza a long-acting bronchodilator with a steroid in addition to being an anticholinergic?

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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jmrommes
Contributing Member

1204 Posts

Posted - Apr 11 2013 :  10:20:01 AM  Show Profile  Reply with Quote
Tudorza is just an anticholinergic and therefore would logically only replace Spiriva or Combivent if it replaces anything. It is not a LABA and it doesn't contain any inhaled steroid, so I agree with Penny: why are your docs stopping the Advair? If they are pulmonologists, I really want to know the answer; if they are PCP's I think the answer would be suspect. I'd still like to know......

Jean

Exercise not only lets me live, it enables me to have a life.
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Sokcap48
Member

USA
338 Posts

Posted - Apr 11 2013 :  10:21:37 AM  Show Profile  Reply with Quote
Hi Penny-- I don't plan on any sudden changes. Just thought I would ask some questions when I see the doctor to see if there is some new ideas and schools of thought out there. If I don't find out before I will ask about bronchodilator abilities.

Sokcap48
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PennyPA
Contributing Member

USA
4633 Posts

Posted - Apr 11 2013 :  10:47:57 AM  Show Profile  Reply with Quote
Paul, I really wasn't referring to you but more to James who quit the Advair. I read that you were just going to talk to your doc about it...but you did mention that the Tudorza would save you money over the Advair and Spiriva that, I guess, you're currently using.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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Sokcap48
Member

USA
338 Posts

Posted - Apr 11 2013 :  10:54:14 AM  Show Profile  Reply with Quote
Penny you will be better at understanding this than me, but this is from the Forest lab site. Tudorza "Produces broncohodition by inhibiting acetylcholine's effect on muscarinic receptors in the airway smooth muscles.". Check out the site and tell us what you think. Now it is off to Rehab I go hi ho hi ho hi ho !!! Paul

Sokcap48
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JamesW-IL
Rookie

USA
7 Posts

Posted - Apr 11 2013 :  3:15:26 PM  Show Profile  Reply with Quote
There are a number of Medicare Part D drug plans that cover Tudorza in Chicago, Illinois. Please go to www.medicare.gov and select drug plan info for your zip code to see what plans cover Tudorza in your zip code. My pulmonary doctor dropped Advair because of the residual taste it left in my mouth. I switched to Wellcare from AARP RX to cover TUDORZA. I did not have any inside information on what drug plans covered TUDORZA. I did a little research and suggest you do the same if you want to use it.
I also suggest you peruse the clinical trials for Tudorza in Europe and elsewhere and ask your pulmonary doctor about it. As others have pointed out, Tudorza "Produces broncohodition by inhibiting acetylcholine's effect on muscarinic receptors in the airway smooth muscles." Advair medicine is a combination of a steroid and a bronchodilator. I'm off steroids while achieving broncohodiion with Tudorza. I am in the process of obtaining the results of my spirometry test and will be retested within a year to discern any improvement in lung capacity. Will post results then to allay skeptics and cynics.

JamesW
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tsainta
Contributing Member

USA
1291 Posts

Posted - Apr 11 2013 :  3:58:14 PM  Show Profile  Reply with Quote
What in heaven's name is "broncohodition?" Can't find it defined anywhere. Do you mean broncodilation?

Tony-CA

Why do they lock some gas station bathrooms? Are they afraid someone will break in and clean them?
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Sokcap48
Member

USA
338 Posts

Posted - Apr 11 2013 :  4:57:47 PM  Show Profile  Reply with Quote
Tony yes most likely means the same. looks like I and James both took it right off Forest Lab web site. If I read it right that is the word for the condition a bronchodilator produces. If I am wrong one of the smarter ones of this group will tell us different.

Sokcap48
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CarolCA
Contributing Member

USA
3156 Posts

Posted - Apr 11 2013 :  6:03:59 PM  Show Profile  Reply with Quote
The problem is that you can't switch Plan D's in the middle of the year so for those people just having it prescribed may have to wait a while.
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JamesW-IL
Rookie

USA
7 Posts

Posted - Apr 11 2013 :  6:42:15 PM  Show Profile  Reply with Quote
People can switch Plan D drug plans if they qualify for certain exceptions: low income with help from state or social security, moving to a new area, losing drug coverage, etc., etc. Go to www.medicare.gov for a complete listing of exceptions that allow one to switch drug plans before normal enrollment time and don't pay attention to ignorant posters who give wrong or incomplete information. Drug plans add new drugs all the time. Periodically, one should check the medicare web site to compare drug plans.

JamesW
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PennyPA
Contributing Member

USA
4633 Posts

Posted - Apr 11 2013 :  7:18:24 PM  Show Profile  Reply with Quote
James, you've posted 6 times. There is no reason you should be so damn rude since you're a relative newcomer to this board. Actually, rudeness isn't too acceptable any of the time.

Yes, SOME people can change plans IF they qualify for one of the exceptions. However, under normal conditions you can only change during certain times. See http://tinyurl.com/b2x8acx. If you move to a new state, you can switch is IF your current plan isn't carried by that state. Once you've gotten on a Plan D, there is no reason you should lose drug coverage, etc. etc. The information Carol gave was NOT wrong. Could you show where you say people can change whenever they want? Remember, we're talking only about changing plans...not enrolling for the first time.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS





Edited by - PennyPA on Apr 11 2013 7:25:48 PM
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JamesW-IL
Rookie

USA
7 Posts

Posted - Apr 11 2013 :  8:05:05 PM  Show Profile  Reply with Quote
The information CarolCA gave on swithing drug plans was not wrong but incomplete as I stated. CarolCA was wrong when she led me and others to believe it would be a long time before Tudorza was a covered drug under Medicare Part D Drug plans. Searching on Medicare's web site, I found multiple plans available in my zipcode. i wasn't being rude. i was stating a fact. It's obvious to me that there is no correlation between the number of posts one has made and their helpfulness to others seeking knowledge.

JamesW
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Rita1
Member

429 Posts

Posted - Apr 11 2013 :  8:32:35 PM  Show Profile  Reply with Quote
Penny, you accused both James and me of being rude today. Are you feeling okay?

Rita
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CarolCA
Contributing Member

USA
3156 Posts

Posted - Apr 11 2013 :  8:42:12 PM  Show Profile  Reply with Quote
James, I gave you my opinion and in rereading my first post to you I see no reason why you have continued to be rude to me. There are always exceptions to things. You come in here and start calling me ignorant from the get go. Fortunately for you I am not a moderator of this forum or you would be gone. This is an exchange of ideas and I have never been rude to you. Even if you don't agree with what I say you don't need to be rude. I will put my experience up to yours anyday and not because of my posts.
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Dave-OH
Administrator

USA
3380 Posts

Posted - Apr 11 2013 :  8:42:18 PM  Show Profile  Reply with Quote
The reality is that most people can not change their Part D, supplemental plans for Advantage except during the open enrollment period. I am currently in a legal dispute with my Medicare Advantage Plan. Their web site shows my doctor and hospital as in network, but they keep charging me out of network prices. I can not change until next year.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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PennyPA
Contributing Member

USA
4633 Posts

Posted - Apr 11 2013 :  9:36:37 PM  Show Profile  Reply with Quote
I'm feeling fine, Rita. You both were rude...you, not so much; James, much.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS





Edited by - PennyPA on Apr 11 2013 9:44:04 PM
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GinaFL
Rookie

USA
2 Posts

Posted - Apr 24 2013 :  6:27:33 PM  Show Profile  Reply with Quote
Not sure if this has been covered. I recently got prescription for Tudroza to take with Advair. My question is how far apart should you take Advair and Trudoza. I am to take each 2X a day.
I got one answer at Dr. office and a different answer from Pharmacist. Don't want to overdose.
Thanks in advance.
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Bo H
Senior Member

USA
971 Posts

Posted - Apr 24 2013 :  6:36:02 PM  Show Profile  Reply with Quote
You can take them anytime you want to. Each med 12 hours apart. There is no danger of overdosing.

Bo in Al
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skhill
Member

USA
65 Posts

Posted - Apr 28 2013 :  10:58:16 PM  Show Profile  Reply with Quote
Hi all it as been awhile since I have been on here. My pc went out on me and I had to get a new one so here I am. I ahd a real hard time remembering my user name too. I have a sample of the Turdorza and my Advantage Insurance paid for the my prescription. I pay $6.40 for mine. I have not tried it yet but I am going to tomarrow. I cannot take spiriva. I wish I could cause it helped me breathe a lot better for about 6 hours but it also made me feel like I was having a heart attack. I am the one who is VERY sensitive to medications. If there is a side affect I will be lucky enough to feel them or have them. It can be very frustrating. For right nowI am still nebbing every 2-3 hours every day 24 hrs a day. Even during the night which means I do not sleep well or longer than 2hours at a time. I will let you all know how it works for me. I was told it has less side affects than Spiriva. I dunno but it has not been out very long at all. I am afraid my albuterol is not working like it used to either and sometimes it feels like it makes me worse for about the first 20 min after I neb.
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PennyPA
Contributing Member

USA
4633 Posts

Posted - Apr 29 2013 :  11:03:59 AM  Show Profile  Reply with Quote
Nebbing albuterol every 2 to 3 hours 24/7 is sure putting a strain on your heart. I hope you're also under the close eye of a cardiac doctor.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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skhill
Member

USA
65 Posts

Posted - Apr 29 2013 :  12:37:54 PM  Show Profile  Reply with Quote
Penny, I have to dilute my albuterol with sodium chloride and I only neb for no more than 2 minutes at a time so one vial will last me for about 12 hours. I have to dilute the albuterol so I can even take it other wise the heart does go crazy and I get the jitters really bad. So in reality I am not getting as much into my system in a 24 hr period as what the standard does would be. It is very normal for me to take meds in baby doses or not at all. I do worry about how long I can continue the albuterol and it still continue to work for me and without it having any long term damge or affect on my lungs, I heard it can put a coating on your lungs which is not good but if you stop using it for a bit the coating will go away. All I know is I wish I could take the long acting meds like you all can.
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CarolCA
Contributing Member

USA
3156 Posts

Posted - Apr 29 2013 :  5:54:05 PM  Show Profile  Reply with Quote
Mine must be really coated then cause I have used it for 13 years and I use it a lot as it is the only thing that really helps me with no side effects. I can't find anything on the internet that mentions "coating the lungs". Sometimes I just use saline for mucous.
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PennyPA
Contributing Member

USA
4633 Posts

Posted - Apr 29 2013 :  6:00:57 PM  Show Profile  Reply with Quote
I doubt you use it every 2 or 3 hours 24/7, Carol.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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judi
Member

USA
197 Posts

Posted - Apr 29 2013 :  6:29:36 PM  Show Profile  Reply with Quote
skhill, would you mind telling me what happens when you take Advair? I don't take it either but am thinking about trying a very low dose on my own. I can't take Spiriva anymore either.

Thanks,

judi
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skhill
Member

USA
65 Posts

Posted - May 01 2013 :  11:20:47 AM  Show Profile  Reply with Quote
judi, Advair raises my blood pressure pretty high ( I already have high blood pressure) and it makes my heart go crazy. Rapid heart beat, fluttering, feels like it skips beats. I have those heart symptons already for years now but lots of meds intensifies those symptoms. I am a rare bird and an unfortunate one since I experience almost all the side effects from almost all meds. It really makes it hard to treat any of my illnesses. I am going to ask if I can try only a steroid inhaler instead of the combo. I have a Dr.s appt next week on the 8th so I will see what he has to say. He says I am in stage 3 and it took me about 6 months after my PFT to get that results. I am really upset with this doctor and he is the only pulmo specialist in this town. I am also going to an allergist specialist next week too. He treats ashma so I am hoping he will be much better and easier to get into see also.
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GinaFL
Rookie

USA
2 Posts

Posted - May 01 2013 :  11:34:37 AM  Show Profile  Reply with Quote
judi-I have been taking Advair for 3 years. It does very well for me. It was suggested that I try Tudorza along with Advair to help with shortness of breath under exertion. I don't think I need it but am giving it a try. One thing for sure that it does is to loosen my sinuses. Right now my allergies are prevalent. I do find that I get an on and off dull headache. If they don't stop with time I am not sure I will continue to use Tudorza I know it helps when I take a deep breath through my nose.
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PennyPA
Contributing Member

USA
4633 Posts

Posted - May 01 2013 :  1:26:16 PM  Show Profile  Reply with Quote
Gina, it might well work since you will be getting more corticosteroids by taking both.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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rosytomato
Contributing Member

1075 Posts

Posted - May 01 2013 :  7:08:31 PM  Show Profile  Reply with Quote
Tudorza doesn't have a corticosteroid in it. It's more like Spiriva.

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PennyPA
Contributing Member

USA
4633 Posts

Posted - May 01 2013 :  7:40:49 PM  Show Profile  Reply with Quote
You're right, Rosy. I was thinking it took the place of symbicort. It takes the place of Spiriva. My bad.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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msmaxie
Member

USA
25 Posts

Posted - May 27 2013 :  9:21:37 PM  Show Profile  Reply with Quote
Penny...explain to me what is illegal regarding foreign drug purchases. Thanks
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PennyPA
Contributing Member

USA
4633 Posts

Posted - May 27 2013 :  10:18:22 PM  Show Profile  Reply with Quote
Basically, it is illegal for individuals to import drugs to this country but thankfully customs usually overlooks the smaller individual importations.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS





Edited by - PennyPA on May 27 2013 10:18:57 PM
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msmaxie
Member

USA
25 Posts

Posted - May 27 2013 :  10:25:47 PM  Show Profile  Reply with Quote
OK. Thanks. I do order a few of my drugs (with script from doc of course) from Canada
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PennyPA
Contributing Member

USA
4633 Posts

Posted - May 27 2013 :  10:30:13 PM  Show Profile  Reply with Quote
I get 6 months of Symbacort, 6 months of advair and a year of Spiriva from ADC. Don't need a script there. They don't sell any narcotic meds though.

****************************************************************

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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