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PennyPA
Contributing Member

USA
5850 Posts

Posted - May 01 2015 :  10:13:14 PM  Show Profile  Reply with Quote
I don't know how you blow on your soup to cool it, Rita, but my lips are in the same position whether I blow on my soup or blow out a candle. Trouble is, with blowing out candles, you do hard bursts and puff your cheeks out (normally). Cooling soup, you do a long slow exhale and your cheeks don't puff out. But to each his own.

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Rita1
Senior Member

543 Posts

Posted - May 01 2015 :  10:17:37 PM  Show Profile  Reply with Quote
See, there is a difference. That's my point.
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Nikilet
Member

USA
45 Posts

Posted - May 02 2015 :  03:51:10 AM  Show Profile  Reply with Quote
From the descriptions, I guess I blow on my soup!

quote:
Originally posted by PennyPA

Nope, that is normal, Nikilet. So is losing control, usually of urine, when you're very sob.

You're right, fatpuppy. You don't want blow out the candles because that's a short, fast burst of exhale. As you know, you want a long, slow, complete exhale.

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Nikilet
Member

USA
45 Posts

Posted - Jun 15 2015 :  11:15:05 PM  Show Profile  Reply with Quote
I'm hoping I can get some responses by posting back to this original. I went to the doctor. My O2 levels were low, which the doctor made note of, but he said nothing about turning the flow up. He started me out on a 8-day course of Prednisone and then during the last two days of this course asked me to start taking Flovent HFA, 2 puffs twice a day. He also said I shouldn't have to use so much Albuterol.

My O2 levels really came up during the course of Prednisone, but now they are back down. With the Flovent, I started off with 1 puff because my pharmacist said that would be fine to test the waters. After the first day with 1 puff, I went to 2 puffs the next morning and I felt ill all day. I dropped back to 1 puff/twice a day and have stayed there. I'm wondering if that is why my O2 levels have come down???

As to the Albuterol, I don't use much. I have one of the Omron MicroAir machines. I put an ampoule of Albuterol in that and then I use that machine as my rescue inhaler, as needed. Normally I go through 1 ampoule in a 24-hour period. If he takes my Albuterol away from me I'm going to be in trouble because neither the Spiriva or Flovent is going to help with a bad breathing spell.

I go back to him in July but I'd sure like to get some input from the community.
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Nikilet
Member

USA
45 Posts

Posted - Nov 07 2017 :  11:39:30 AM  Show Profile  Reply with Quote
Hi Penny. I was just reading through this post again. I did ask my doctor again in July about turning my oxygen up and he fairly shouted "NO!" at me. I told him about my excessive flem and it being hard for me to get rid of because it's so thick and sticky, and about the Flovent messing with my throat. He told me to be sure to use a water bottle with my oxygen and to take Mucinex. He seen for himself how the oxygen tubing affects my ears. I asked him for Temovate since I had used this on my ears once in the past for a reaction to jewelry and it worked so well. He told me that was too strong and gave me something else that is helping, but not solving the problem. It's just keeping my ears from getting really bad rather than clearing anything up.

So you see, I'm having a bit of a communication problem with my doctor. He's a very nice man and seems very caring, but there you have it. I live in a rural area and don't have a lot of choices for doctors unless I want to travel 200 miles round trip. I don't.

quote:
Originally posted by PennyPA

That's an old, old wive's tale, Nikilet. Where did you hear that? Just ask your doctor and see what he says. And you might tell your delivery guy that he shouldn't be telling people this since it is totally untrue.


Edited by - Nikilet on Nov 07 2017 12:10:00 PM
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Nikilet
Member

USA
45 Posts

Posted - Nov 07 2017 :  12:26:18 PM  Show Profile  Reply with Quote
I want to thank everyone who contributed to this discussion because it was very informative for me. I haven't been back here for a long time but came back today and read through all posts again and re-learned some things. So much helpful stuff here. I may try turning up the oxygen a bit again the next time I am exerting myself. I have become even more sedentary because I become huffy/puffy to the extreme if I exert myself and it doesn't take a lot of exertion.
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Sokcap48
Senior Member

USA
873 Posts

Posted - Nov 07 2017 :  9:51:40 PM  Show Profile  Reply with Quote
Nikilet- hi you might want to consider giving your ears a rest durning the day with a product called Oxi-arm. I used one for two or three years part time when I was on 02. I even wore it driving. Then I would switch to a "soft hose" cannula during the night. Here is a link, there are several places that sell them. I did 't like the way the head band felt so I converted mine to an old phone headset that was more comfortable. If you ever want to do that email me and I can send you picture.
Hope this helps.
https://youtu.be/FhLX_g3BY9Q

Paul-Ut
The Journey Continues.

Edited by - Sokcap48 on Nov 08 2017 11:55:21 AM
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tsainta
Contributing Member

USA
1765 Posts

Posted - Nov 08 2017 :  12:22:05 AM  Show Profile  Reply with Quote
I would turn the oxygen to whatever level it takes to keep your sats in the mid-90s. Let some normal people check their sats on your oximeter. You will find that their sats are usually in the 96-98 range. Why is it that any doctor would think you should deprive yourself of the same levels?

Tony-CA

50% of dealing with COPD is common sense.
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paulmjo
Member

USA
69 Posts

Posted - Nov 08 2017 :  07:32:46 AM  Show Profile  Reply with Quote
I have pretty bad mucus sometimes. Usually couple times a day, huff cough, breath steam from boiling pot, acapellar ,nebulizer, prednisone, unfortunately can take up to two hours to get clear.
Then the nose starts running, its work but you need to clear. I have used Mucinex also, not sure it works that well.. My FEV1 is 23, but O2 is not bad without oxygen, the coughing is sometimes the worst part, the other night started coughing at 10:30, stopped at 1:30 am. I think you just have to experiment or what works best. Good luck
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Sandy9s
Member

USA
341 Posts

Posted - Nov 08 2017 :  11:09:34 AM  Show Profile  Reply with Quote
Re: Mucinex

I buy the cheap generic guafisen (sp?) and I take 1 every 4-5 hours. This works for me. When I tried the 12-hour Mucinex, it did nothing except make me sick.
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micah35
Member

51 Posts

Posted - Nov 10 2017 :  3:22:43 PM  Show Profile  Reply with Quote
I have recently started getting some mucus build-up in my mouth, particularly when drinking carbonated beverages. I have mild emphysema and have never had an issue with mucus before. How do you know whether it is coming up from the lungs rather than from a possible sinus drip?
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deb-fla
Member

USA
60 Posts

Posted - Nov 10 2017 :  4:20:52 PM  Show Profile  Reply with Quote
quote:
Originally posted by Dave-OH

Yes, I now use 7%, but I used 3% for years. Talk to your doctor about it. I find it works well.


deborah brantley
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deb-fla
Member

USA
60 Posts

Posted - Nov 10 2017 :  4:24:11 PM  Show Profile  Reply with Quote
Dave, do you use the pre mixed salt packages? I have those for my water pic nasal flush, I recently bought pink salt for the nasal. Do you think I could add a little to the nebulizer?

deborah brantley
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Dave-OH
Administrator

USA
4072 Posts

Posted - Nov 10 2017 :  8:33:37 PM  Show Profile  Reply with Quote
For sinus I use the Nelmed packets. For lungs, I get the Rx version of sterile premix.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
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Greg-TX
Member

222 Posts

Posted - Dec 23 2017 :  7:55:46 PM  Show Profile  Reply with Quote
This topic has covered a lot of subjects and without starting a new thread, I am hoping someone can help me out.

I cut a lot of grass, at least two days on a tractor every two weeks. I try to wear a dust mask but I feel like I'm suffocating. What's the best thing I can use?

Greg-TX
"Alcohol"- because no great story ever started with someone eating a salad!
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Dave-OH
Administrator

USA
4072 Posts

Posted - Dec 23 2017 :  11:47:27 PM  Show Profile  Reply with Quote
A industrial respirator.

https://smile.amazon.com/3M-Respirator-6200-Respiratory-Protection/dp/B007QY8X2K/ref=sr_1_1?ie=UTF8&qid=1514090897&sr=8-1&keywords=industrial+respirator

https://smile.amazon.com/N95-Particulate-Respirator-Breather-Valve/dp/B0084G48PK/ref=sr_1_2?ie=UTF8&qid=1514090897&sr=8-2&keywords=industrial+respirator

https://smile.amazon.com/Vktech-Industrial-Chemical-Anti-Dust-Respirator/dp/B00B1YP7U2/ref=sr_1_9?ie=UTF8&qid=1514090897&sr=8-9&keywords=industrial+respirator

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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