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 Stem Cells
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Gerry-FL
Member

USA
64 Posts

Posted - Feb 20 2019 :  9:21:57 PM  Show Profile  Reply with Quote
Well, it might be snake oil but let's face it, there's no other possible cure out there. Tomorrow I go in for a stem cell injection. I've done lots of research and I know it's a long shot but there is really nothing to lose but a few dollars. Okay, a LOT of dollars. It cost about the same as a Viking river cruise for two. Anyway, the word is I MIGHT see results in 3 weeks. I'll keep anyone posted who is interested.

"I want to go quietly in my sleep like Uncle Amos. Not screaming and yelling like his passengers."

tsainta
Contributing Member

USA
1866 Posts

Posted - Feb 21 2019 :  12:41:39 AM  Show Profile  Reply with Quote
Please keep us posted. Over the years a number of posters have stated they were about to try stem cells, but none ever posted again.

Tony-CA

Take care of business or business will take care of you.
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SteveinMechanicsburg
Member

112 Posts

Posted - Feb 21 2019 :  07:47:14 AM  Show Profile  Reply with Quote
I suppose this is the time to make a positive comment but . . . I can admit only to having a visceral loathing of the Chiropractic (and other) quacks who tout this stuff. As Ms. Rommes said, if it worked, they wouldn't have to make countless testimonial videos. Yes, do let us know and good luck. BTW, it is this dirtbag who I find most disgusting.

https://www.youtube.com/watch?v=Q7Q4VBN-bhU

Edited by - SteveinMechanicsburg on Feb 21 2019 07:53:45 AM
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jmrommes
Contributing Member

1964 Posts

Posted - Feb 21 2019 :  08:28:49 AM  Show Profile  Reply with Quote
Steve, these are MDs and DOs who are touting this scam, not chiropractors. I suppose that some of the clinics have chiros on their staff, along with massage therapists (massage is good for you!) and maybe acupuncturists, but it's the docs leading this charge.

Exercise not only lets me live, it enables me to have a life.
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SteveinMechanicsburg
Member

112 Posts

Posted - Feb 21 2019 :  09:00:44 AM  Show Profile  Reply with Quote
Check the video. That is of a Chiropractor. That doesn't mean you are wrong, though.
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Dave-OH
Administrator

USA
4217 Posts

Posted - Feb 21 2019 :  12:33:13 PM  Show Profile  Reply with Quote
It is a scam. And I would not pay for a therapy unless my university doctor recommended it.

Dave, Forum Administrator
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SteveinMechanicsburg
Member

112 Posts

Posted - Feb 22 2019 :  10:33:18 AM  Show Profile  Reply with Quote
Here's another by the Chiropractor:

https://www.youtube.com/watch?v=T1UlQm3Y4lA

It amazes me that nobody who goes to a faith-healer ever makes their own video about how they were helped. Same here . . . none of these people make their own videos about the stem cells.
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Gerry-FL
Member

USA
64 Posts

Posted - Feb 23 2019 :  10:28:44 PM  Show Profile  Reply with Quote
Brief update, I got the treatment Thursday as planned. The short story is that stem cells are what repair damage in our bodies - both injury and illness. We have lots of them when we are young and we heal quickly but much fewer as we get older. The purpose of the stem cell treatment is to temporarily boost our healing system to something more like it used to be. It is far from an exact science, more of a hail mary but the concept sounds reasonable. There is no real downside from a medical standpoint, only financial. In my case, I had two injections for hip arthritis and an additional IV on the off chance that it might help my copd. It takes a minimum of 3 to 6 weeks to see results but I'll keep you posted. The treatment cost $8500. That is either cheap or expensive depending on your perspective. The only real problem is you have to avoid all steroids for a couple of weeks and that is really hitting home on my breathing. I will get by with more oxygen and albuterol.

"I want to go quietly in my sleep like Uncle Amos. Not screaming and yelling like his passengers."
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tsainta
Contributing Member

USA
1866 Posts

Posted - Feb 24 2019 :  12:16:19 AM  Show Profile  Reply with Quote
Thanks. Sincerely hope you see some positive results.

Tony-CA

Take care of business or business will take care of you.
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fatpuppy
Member

179 Posts

Posted - Feb 24 2019 :  11:38:32 AM  Show Profile  Reply with Quote
quote:
Originally posted by Dave-OH

It is a scam. And I would not pay for a therapy unless my university doctor recommended it.



And a word of warning from the FDA
https://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm628918.htm

“As democracy is perfected, the office of president represents, more and more closely, the inner soul of the people. On some great and glorious day the plain folks of the land will reach their heart’s desire at last and the White House will be adorned by a downright moron.” H.L.Mencken 1920
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Dave-OH
Administrator

USA
4217 Posts

Posted - Feb 24 2019 :  2:56:07 PM  Show Profile  Reply with Quote
I have been told by some of the top lung doctors in the country (when a Hopkins doctor says everyone knows Frank you know he is a national expert) that it does not work. I can not relate what they said to me, but if it did work, they would be doning the research, not some fly by night high price clinics.

Dave, Forum Administrator
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rjh-spokane
Member

USA
43 Posts

Posted - Feb 25 2019 :  02:51:35 AM  Show Profile  Reply with Quote
Glad to see the FDA has finally done this fatpuppy
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Gerry-FL
Member

USA
64 Posts

Posted - Feb 27 2019 :  8:03:21 PM  Show Profile  Reply with Quote
Sixth day update: Well, I was happy to see the FDA article mentioned above. "“The FDA is committed to advancing the field of cell-based regenerative medicine. We’re implementing new policies to make it more efficient to safely develop these promising new technologies."
There are three types of therapy currently in use. The one referred to in the article is stem cells produced from amniotic fluid. The other types are cells taken from umbilical chord directly and cells taken from the patients own body. I decided that only the second type made sense and that's what I had.
Today I returned to the clinic for some follow up. I have an irritation at the injection site for each of the hip injections about 3/4 inch in diameter. Nothing major, just red and a bit itchy. It appears I may be allergic to sulfa compound used in the carrier fluid for the stem cells. I have been off Symbicort for a week now, and it seems to be getting better as I grow accustomed to the lack of steroids. On the good side, my constant bruising on my forearms is getting much better. On the down side, I had more SOB moments for the first few days but seem to be getting past it now. I imagine that is just body adjusting since it's too soon for the stem cells to really do anything IMHO. The only medications I have been taking is Spiriva twice a day and am going back to nebulizer once or twice at the recommendation of the Stem cell clinic. Really not having much problem breathing now. My hip is doing very well, but I suspect that may be from less activity rather than early stem cell help. In short, so far so good. I will keep posting updates.
Gerry

"I want to go quietly in my sleep like Uncle Amos. Not screaming and yelling like his passengers."
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Jocopd
Member

USA
160 Posts

Posted - Feb 27 2019 :  10:25:09 PM  Show Profile  Reply with Quote
Gerry I am so glad to hear how well you are doing. There was a friend in pulmonary therapy/rehab that did the stem cells for copd in Phoenix and did the 2 step/dose ones. It was very expensive but he was told it added quite a bit to the outcome if he did twice instead of just once. That was last spring and I have not seen him back in rehab so I assume it went well. He had one dose/treatment done at the time and would be doing the second about 2 months later.

Could you please clarify which ones you decided on? You said the second ones but I don't know if you mean the second on your list or second in that sentence :)

And to make sure its clear - this is more for the hips right? Also am curious why they have you on Spiriva twice a day - I thought normal dose is one inhale a day. Were you on twice a day before?

Wishing you continued improvement and please keep us informed.
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Gerry-FL
Member

USA
64 Posts

Posted - Mar 01 2019 :  1:47:31 PM  Show Profile  Reply with Quote
quote:
Originally posted by Jocopd

Gerry I am so glad to hear how well you are doing. There was a friend in pulmonary therapy/rehab that did the stem cells for copd in Phoenix and did the 2 step/dose ones. It was very expensive but he was told it added quite a bit to the outcome if he did twice instead of just once. That was last spring and I have not seen him back in rehab so I assume it went well. He had one dose/treatment done at the time and would be doing the second about 2 months later.

Could you please clarify which ones you decided on? You said the second ones but I don't know if you mean the second on your list or second in that sentence :)


And to make sure its clear - this is more for the hips right? Also am curious why they have you on Spiriva twice a day - I thought normal dose is one inhale a day. Were you on twice a day before?

Wishing you continued improvement and please keep us informed.



I see that I mis spoke a bit. The Spiriva is actually two puffs once a day. As to types, I had the cells taken from umbilical chord. Last in answers, Mayo is doing the research also they are just hard to get in with since they are trying to drop all medicare recipients.
On the actual update front, it is day 8 and the changes I've seen are these. My hip is measurably better, but in fairness I have been less active due to less breathing. In the last couple of days my breathing has improved but we all know it's kind of cyclical anyway. I may just be getting used to not having the symbicort. I have been doing nebulizers once or twice a day when I remember to just because it might be helping and shouldn't hurt. I am also sleeping better probably because I do a nebulizer just before bedtime. Last in changes I noticed that a particularly ugly bruise on my forearm has healed very quickly, much like it did when I was much younger.
Nothing really new, I'm just trying to report regularly. Oh yes, I did have this treatment for the hip problem since I didn't want to do a hip replacement. If it helps the copd that is a bonus.

"I want to go quietly in my sleep like Uncle Amos. Not screaming and yelling like his passengers."
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SteveinMechanicsburg
Member

112 Posts

Posted - Mar 02 2019 :  06:23:49 AM  Show Profile  Reply with Quote
Who, among us, wouldn't be thrilled if this worked? But, I sure don't get how this can repair the lost elasticity in lungs; the damaged alveoli; and, the hyperplasia that occurs in the large airways that both narrows them and enables the goblet cells to produce excess mucus. In my mind, it is like putting fresh oil in your car and expecting it to revitalize your catalytic converter. But, I've been wrong about many, many, things. Good luck to all who try it.

Edited by - SteveinMechanicsburg on Mar 02 2019 06:24:20 AM
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jmrommes
Contributing Member

1964 Posts

Posted - Mar 02 2019 :  09:16:14 AM  Show Profile  Reply with Quote
Please read this thread carefully. The stem cell injections were designed to help his hip, where they have been clinically proven to make a significant difference. There have been no such studies of these particular cells having any effect on the lungs. He's made some changes in his lung medications and treatments which could possibly account for the changes he's seeing in his breathing.

I hope his pulmonary docs are paying good attention to what's happening to him, because this could give us new direction in stem cell research designed for the lungs. Until we get some research that demonstrates that these cells can have good effects on lungs as well, we need to continue to be vigilant. Please also note that the stem cells he had to choose from are completely different from the stem cells offered by the clinics who want our money.

Exercise not only lets me live, it enables me to have a life.
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Dave-OH
Administrator

USA
4217 Posts

Posted - Mar 02 2019 :  1:15:57 PM  Show Profile  Reply with Quote
Jerry, you did not make clear in your first post this was stem cells for your hips. I know those do work, as one of my VA doctors does it for his private practice and we talked last time I saw him.

This is not a COPD or lung disease issue, and should never have been posted here. I am moving it to Off Topic. You are warned, do not do this again.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
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Gerry-FL
Member

USA
64 Posts

Posted - Mar 02 2019 :  1:34:01 PM  Show Profile  Reply with Quote
quote:
Originally posted by Dave-OH

Jerry, you did not make clear in your first post this was stem cells for your hips. I know those do work, as one of my VA doctors does it for his private practice and we talked last time I saw him.

This is not a COPD or lung disease issue, and should never have been posted here. I am moving it to Off Topic. You are warned, do not do this again.


I suspect you won't post this, but Dave you are a pompous ass.
Gerry

"I want to go quietly in my sleep like Uncle Amos. Not screaming and yelling like his passengers."
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Gerry-FL
Member

USA
64 Posts

Posted - Mar 02 2019 :  1:37:48 PM  Show Profile  Reply with Quote
quote:
Originally posted by Dave-OH

Jerry, you did not make clear in your first post this was stem cells for your hips. I know those do work, as one of my VA doctors does it for his private practice and we talked last time I saw him.

This is not a COPD or lung disease issue, and should never have been posted here. I am moving it to Off Topic. You are warned, do not do this again.


In my opinion, anything vaguely relevant to copd belongs here. The fact that I have to drop my copd medications for this treatment is relevant. The fact that I tried the IV at the same time to see if it could help is relevant. You may be certain that any avenue not tried/investigated won't be of value.

"I want to go quietly in my sleep like Uncle Amos. Not screaming and yelling like his passengers."
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Dave-OH
Administrator

USA
4217 Posts

Posted - Mar 02 2019 :  8:25:32 PM  Show Profile  Reply with Quote
I am leaving it. You mislead the group into believing you were having lung stem cells. You may have had both, but your rambling is useless to us in understanding what you did or did not do. With you last posts, I have locked your account.

We have an appeals process for the group COPD-Support.com, and you can contact management of the group if you want to be reinstated. There is a procedure. I wrote it, and am VP of the non-profit that sponsors this site.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
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Dave-OH
Administrator

USA
4217 Posts

Posted - Mar 03 2019 :  3:35:11 PM  Show Profile  Reply with Quote
I have no idea what Gerry did or not do, what treatment via stem cells he took. He was not clear in the post. I do know that he had stem cells for his hip. No idea what the IV was. The thread veered, but the penalty was for calling me an ass. That would get you thrown out of any or our 3 communities - list, forum or Facebook page.

If he was clear in detail with his fist post and consistent across all posts, there would not have been an issue. I will email him tonight and share the issues with him.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
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