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ilovelabbies
Rookie

13 Posts

Posted - Jan 11 2017 :  10:00:08 AM  Show Profile  Reply with Quote
Hi, hope everyone is feeling well.

I have a question on shortness of breath. Is it normal to feel it say if I am just walking from the living room to the kitchen? I have been in this funk for probably the last 3 months now.
Sometimes I have shortness of breath even with resting too.

I take Spireva, Pulmacort and Albuterol.

I cannot go see me pulmo doc right now because I do not have any insurance.

Thank you in advance for your responses.

jmrommes
Contributing Member

1650 Posts

Posted - Jan 11 2017 :  10:49:07 AM  Show Profile  Reply with Quote
The question isn't whether it's normal for anyone with COPD to feel sob going from one room to another in your home or feeling sob just sitting. The question really is this : is it normal for YOU to feel those things?

You know what your symptoms of COPD were when you were diagnosed and you know what they are now. If there has been a steady decline in your symptoms, I would suggest that you at least go to the ER where they will have to treat you whether or not you have insurance, or that you find a free clinic or something. If you've had that steady decline, something's going on and you need treatment.

To let it go at this point is probably an invitation to a hospital stay and most of us would do just about anything to avoid that.

Exercise not only lets me live, it enables me to have a life.
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Rita1
Senior Member

543 Posts

Posted - Jan 11 2017 :  1:40:24 PM  Show Profile  Reply with Quote
I agree with Jean. If this is not normal for you, you should seek medical attention. However, if you go to the er, they will treat you, but they will go after you for the bill. I have a friend who is still paying off a bill, two years later, for her 23 year old son whose boss called 911 when her son had chest pains at work. The er did multiple expensive tests to the tune of several thousand dollars. If you are a poverty patient, however, they will write it off.

Rita
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ilovelabbies
Rookie

13 Posts

Posted - Jan 11 2017 :  6:48:48 PM  Show Profile  Reply with Quote
You guys are scaring me. I can't go to the hospital or the ER cause I don't have insurance. My husband would have a fit if I told him I needed to go to the ER. He lost his job a few months back and we have no income. He doesn't take my COPD seriously.

Is this normal for anyone to have SOB just from walking from one room to another? It is not severe shortness of breath, just mild.
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jmrommes
Contributing Member

1650 Posts

Posted - Jan 11 2017 :  9:13:49 PM  Show Profile  Reply with Quote
I'm sorry you're scared. You asked a question; we answered. Only you can decide what to do: seek help or try to wait it out and see if it gets better. There are consequences to both. You have to decide which you're willing to accept.

In your shoes I would be looking for a community clinic, a university hospital where they often do pro bono work for the experience, or talk to your doc about reasonable alternatives.

I wish you the best.

Exercise not only lets me live, it enables me to have a life.
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Rita1
Senior Member

543 Posts

Posted - Jan 12 2017 :  06:56:51 AM  Show Profile  Reply with Quote
I hope you are doing better this morning, Ilove. Here is my The answer to your question. You used the word "normal" and there is no definitive answer because what is normal for one of us may not be normal for another. Apparently, it is not normal for you to have shortness of breath walking from room to room in your home.
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justacaregiver
Rookie

USA
12 Posts

Posted - Jan 12 2017 :  08:46:40 AM  Show Profile  Reply with Quote
Well, it sure looks like you have people right here that are concerned about you. COPD is something that should be taken seriously. After reading your post, I was thinking about what I would have done if I was the one not feeling well and came up with a few suggestions, Try toe local Health Department or Community Action near you. I'm sure when you speak with them, you'll find that you're not the first one that had asked for help.

Right now the flu is going around and people that have gotten the shot are coming down with it. RSV is also, and people with lung problems have a bad time. Strep too. and as you already know, COPD just makes everything out there worse. The trick here is to try to manage at home the best you can because hospital bugs can be very hard to deal with.

Please get some help and feel better.
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ilovelabbies
Rookie

13 Posts

Posted - Jan 12 2017 :  4:07:21 PM  Show Profile  Reply with Quote
Oh my, you all are so kind here. I live in an area where there is nothing around to go to except for Apple Care and they charge or send you up the ladder to something that costs even more money. The closest place I could go is Savannah or Jacksonville. My husband is unaware of how I feel because he doesn't think it is serious but I am not feeling up to par.

We went to a fairly local hospital today to try to get an MRI on my husbands back and it just about did me in walking back to the truckÖ..burning in my chest and shortness of breath. I hope this passes soon as I cannot tell him I need to go to the Doc. or the ER. I am so sad that he doesn't take me seriously.

Maybe I will go to Apple Care. That seems like it would be the cheapest. What will they do to me? If it is referring me to another place than that is out of the question. I need something that is cheap.

I should mention that I was diagnosed last summer with COPD. All I know is the CT showed I was in the Mild/Moderate Stage. I am only 50 years old. I don't know anything about FEV's and all that other stuff that is mentioned on the board.

Everyone here is so wonderful and I appreciate your input. I am glad all of you are around to talk to. It helps.

Edited by - ilovelabbies on Jan 12 2017 4:17:34 PM
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Sokcap48
Senior Member

USA
772 Posts

Posted - Jan 12 2017 :  4:21:05 PM  Show Profile  Reply with Quote
If your husband hasn't noticed your difficulty in breathing you need to make sure he IS taking you serious! If he can go to the doc for his back you should be able to do the same for your breathing. Maybe you should clothes pin his nose shut, duct tape his mouth shut, poke a small hole in the tape and let him breath that way all day and then see if he thinks it is serious! Also if you are over weight loose some weight. If you are not exercising start. But I would talk to a doc about that first also. Start slow and work your way up til you can walk 30 min. Non stop. It looks to me like you need to see what is reallly wrong and get a professional opinion. You can NOT put a price tag on your health!!! pay now or pay later. Bottom line go get some help.

Edited by - Sokcap48 on Jan 12 2017 4:44:28 PM
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micah35
Member

35 Posts

Posted - Jan 12 2017 :  4:37:44 PM  Show Profile  Reply with Quote
I'm relatively new to all of this too, and definitely have no expertise in the matter, but the burning sensation that you mentioned in your last post makes it sound as if it would be worth finding out whether some of your symptoms are heart related. Just a thought, and I couldn't agree more with Sokcap's post in every way, particularly that your husband needs to start taking you and your health as seriously as his own. Also just wanted to just wish you well from a fellow Lab lover, and I hope you have one around to make the tough days a little brighter.
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justacaregiver
Rookie

USA
12 Posts

Posted - Jan 12 2017 :  5:16:27 PM  Show Profile  Reply with Quote
FEV values can only be obtained by having a Pulmonary Function test done. Shortness of breath or wheezing, worsening cough, significant decrease in activity are some very important warnings. This is a few of the things you need to be cautious about. A call to the Doctor that told you about your COPD would be in order now. This call could just be an adjustment in your medicines. No one wants to see this become a situation when it would require a trip to an emergency room. I know about emergency rooms and hospitals all too well because I'm there right now and have been there for the past four days.I know how fast things like this can snowball and if I can do the slightest amount of anything to keep you from getting sicker, I will.

If nothing else, ask yourself this, If you can't take care of yourself, how will you be able to take care of your husband?
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Dave-OH
Administrator

USA
3929 Posts

Posted - Jan 12 2017 :  6:17:40 PM  Show Profile  Reply with Quote
If you go to an ER, by law they must treat you even if you can not pay.

Dave, Forum Administrator
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skhill
Member

USA
186 Posts

Posted - Jan 15 2017 :  1:10:22 PM  Show Profile  Reply with Quote
IT really saddens me to hear you say that your husband can go see a doctor but you cant. That would not fly with me for a second. Your health is important too and you have to be your own advocate in this. We cannot take you to the doctor but you have to be strong enough and tell your husband you are having trouble breathing and go to the ER or a clinic. Have your tried Medicaid? No insurance and no income you certainly would qualify. There is no shame in getting assistance for healthcare. There are a lot of people who just does not understand how severe COPD can be and how hard it is to breathe. Most of the time they do not educate themselves on it or they are not around someone who has it and who is struggling with it. I urge you to take care of yourself and GO GET HELP. If you really want to breathe and find out what is going on you will.
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Sandy9s
Member

USA
283 Posts

Posted - Mar 01 2017 :  10:38:31 PM  Show Profile  Reply with Quote
Anxiety can present with similar hard-to-breathe symptoms. I hyperventilated for close to 10 years before a Chiropractor got my muscles back into good condition and then I could deep breathe. This was when I was in my 30's........40+ years ago.
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hapolati
Rookie

USA
18 Posts

Posted - Mar 02 2017 :  1:06:23 PM  Show Profile  Reply with Quote
I have experienced a similar sob problem and use similar inhalers. I know that such decline is extremely frustrating, scary, and depressing. I may try switching inhalers again, although I have little confidence in the "long-acting" ones I've tried. Pursed lip breathing has helped deal with it somewhat. Also, stopping movement when sob attacks start... even though "simple" actions like bending over or reaching up can start sob. The frustration makes me want to scream or cry but don't have the energy or breath for either. Have begun using oxygenator many times a day to recover when oximeter dips into low 80s (usually it's 91). Have begun to seriously question whether life like this is worth the disablement. Started Prozac, but have little faith it will help. An effective long-acting inhaler would. Holding off on requesting prednisone, though in past it seemed to pull me out of downward slide. Shared experiences about COPD struggle help!

terry farley
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PennyPA
Contributing Member

USA
5775 Posts

Posted - Mar 02 2017 :  7:21:15 PM  Show Profile  Reply with Quote
Terri, why not use your concentrator or portable (ask your doc first for a 6-minute walk test) about using oxygen full time. I know it made a great difference on how I felt before my LVRS.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS





Edited by - PennyPA on Mar 04 2017 8:30:44 PM
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ilovelabbies
Rookie

13 Posts

Posted - Mar 04 2017 :  6:39:26 PM  Show Profile  Reply with Quote
Well, I finally got my husband to agree to let me go to the doc. I actually got a PFT but he refunded to let me get a cat scan because it is too expensive. The PFT showed that I had inflammation in my small airways so something similar to that. He prescribed me Servent which now I am on my first day of it thanks to ADC or I would not be able to forward any of my inhalers. I am on 4 inhalers right now. This is my first day on Serevent and I can already tell a difference. Thank you all for your encouragement and help. Hopefully I will be able to get that cat scan soon. Please let me know your experiences with servant if you take it. Love all of you.. Thanks..
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PennyPA
Contributing Member

USA
5775 Posts

Posted - Mar 04 2017 :  8:33:05 PM  Show Profile  Reply with Quote
ilove, I'm not sure what you mean by "I finally got my husband to agree to let me go to the doc." Do you have insurance or does just your husband have insurance...or do neither of you have insurance?

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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PennyPA
Contributing Member

USA
5775 Posts

Posted - Mar 05 2017 :  6:00:39 PM  Show Profile  Reply with Quote
Don't forget to get a copy of the results of the PFT for your own medical records file. Get a copy of the actual test results and a copy of the doc's comments.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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ilovelabbies
Rookie

13 Posts

Posted - Mar 06 2017 :  09:21:52 AM  Show Profile  Reply with Quote
Penny PA, my husband has insurance, I do not.

I never thought to get copies of all my paperwork. That's a good OK.
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Sandy9s
Member

USA
283 Posts

Posted - Mar 06 2017 :  09:52:16 AM  Show Profile  Reply with Quote
Does your husband's insurance cover you too?
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PennyPA
Contributing Member

USA
5775 Posts

Posted - Mar 06 2017 :  5:40:12 PM  Show Profile  Reply with Quote
If it's through his work, it should cover labbies, too.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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jmrommes
Contributing Member

1650 Posts

Posted - Mar 06 2017 :  5:44:26 PM  Show Profile  Reply with Quote
Only if he paid for it. Most company insurance now just covers the employee only; you pay for family members.

Exercise not only lets me live, it enables me to have a life.
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ilovelabbies
Rookie

13 Posts

Posted - Mar 08 2017 :  11:38:12 AM  Show Profile  Reply with Quote
My husband got laid off in January. He was offered insurance for both of us. His coverage was reasonable but mine was going to be $900.00 plus a $12,000 deductible. We had no choice even with all the health problems I have. :(
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SteveinMechanicsburg
Member

47 Posts

Posted - Mar 09 2017 :  7:24:50 PM  Show Profile  Reply with Quote
I'd like to be chipper and say that Paul Ryan and his conservative friends have a solution for you but . . .
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