COPD Support Discussion Boards Active Users: 110 / Visits Today: 3540
Highest Active Users: 709
COPD Support Discussion Boards
Home | Profile | Register | Active Topics | Members | Search | FAQ
Username:
Password:
Save Password
Forgot your Password?

 All Forums
 COPD Forums
 COPD Support - COPD Information
 Notice to new members
 New Topic  Reply to Topic
 Printer Friendly
Author Previous Topic Topic Next Topic  

Dave-OH
Administrator

USA
3874 Posts

Posted - Feb 16 2011 :  1:07:16 PM  Show Profile  Reply with Quote
You must use a valid Email address - you will receive an E-mail to activate your account. If you do not, your account will remain inactive & you will be unable to post. This is a security measure to prevent Forum SPAM.

Please - we send daily reminder emails now. And people still do not look for the messages.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com

Dave-OH
Administrator

USA
3874 Posts

Posted - Feb 17 2011 :  11:09:44 AM  Show Profile  Reply with Quote

Please - we send daily reminder emails now. And people still do not look for the messages.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
Go to Top of Page

Scout
Contributing Member

USA
1019 Posts

Posted - Feb 17 2011 :  2:13:23 PM  Show Profile  Reply with Quote
What are we talking about Dave? Daily e-mails??

Connie-AR
Go to Top of Page

Casey-CA
Senior Member

USA
782 Posts

Posted - Feb 17 2011 :  2:50:48 PM  Show Profile  Reply with Quote
I have no idea either Scout. It must not pertain to us?

Casey formerly majseventh
Go to Top of Page

Dave-OH
Administrator

USA
3874 Posts

Posted - Feb 17 2011 :  3:11:50 PM  Show Profile  Reply with Quote
This in only for people who sign up. We send an email and a lot of them never finish the registration. If they come in via a topic, they may never read the message above. I do not send members regular messages. Sorry if that was not clear.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
Go to Top of Page

CROASTON
Rookie

6 Posts

Posted - Feb 17 2011 :  10:05:44 PM  Show Profile  Reply with Quote
thanks for info..i'm new..registered..activaated my account..and am able to post..so guess i was o.k...just fyi..from new..
Go to Top of Page

Dave-OH
Administrator

USA
3874 Posts

Posted - Feb 18 2011 :  12:14:38 AM  Show Profile  Reply with Quote
I have started sending daily messages to those who have not completed registration. We have a lot of people, like you, who have no problem with getting the email and following the instructions. It seems that some people miss the message at the top, so I added a topic, hoping to help people. Since I do not have phone numbers, I can do no more.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
Go to Top of Page

CROASTON
Rookie

6 Posts

Posted - Feb 19 2011 :  10:29:15 AM  Show Profile  Reply with Quote
THANKS FOR THE CLARAFICATION DAVE..I'LL GET THE HANG OF IT ALL..
Go to Top of Page

CROASTON
Rookie

6 Posts

Posted - Feb 19 2011 :  5:27:04 PM  Show Profile  Reply with Quote
i'm all good..really..
Go to Top of Page

lea
Rookie

United Kingdom
3 Posts

Posted - Sep 29 2011 :  3:23:25 PM  Show Profile  Reply with Quote
joined today, no one to talk to about this whole thing..scarred..diagnosed 2 years im 44yrs old..thought it just meant i would puff and pant more when i got older so i continued to smoke..been reading up and realised ive wrecked any chance ive got of a future.. cant think!!

l,clements
Go to Top of Page

PennyPA
Contributing Member

USA
5755 Posts

Posted - Sep 29 2011 :  4:18:15 PM  Show Profile  Reply with Quote
Lea, post this over on the main board under it's own subject line. These are sticky notes and no one really reads them.

BTW, depending on where you are in your disease (have you quit smoking?), you've got a fine chance for a very good future. Most of us have had copd (emphysema) for 15, 20 and 25 years.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




Go to Top of Page

Predalien
Rookie

18 Posts

Posted - Sep 30 2011 :  7:54:22 PM  Show Profile  Reply with Quote
Thanks for this thread, the mail was stuck in my spam folder and i was wondering why i couldnt use the forum until ive read this topic some hours ago

German information about Copd:
http://www.copd-krankheit.de
Homepage of my copd support group
Go to Top of Page

lea
Rookie

United Kingdom
3 Posts

Posted - Oct 13 2011 :  11:16:28 AM  Show Profile  Reply with Quote
quote:
Originally posted by PennyPA

Lea, post this over on the main board under it's own subject line. These are sticky notes and no one really reads them.

BTW, depending on where you are in your disease (have you quit smoking?), you've got a fine chance for a very good future. Most of us have had copd (emphysema) for 15, 20 and 25 years.

Go to Top of Page

lea
Rookie

United Kingdom
3 Posts

Posted - Oct 13 2011 :  11:18:33 AM  Show Profile  Reply with Quote
quote:
Originally posted by lea

quote:
Originally posted by PennyPA

Lea, post this over on the main board under it's own subject line. These are sticky notes and no one really reads them.

BTW, depending on where you are in your disease (have you quit smoking?), you've got a fine chance for a very good future. Most of us have had copd (emphysema) for 15, 20 and 25 years.




thank you for your help, ive not quit but youve given me more hope.where is the main board?

l,clements
Go to Top of Page

Dave-OH
Administrator

USA
3874 Posts

Posted - Oct 13 2011 :  11:50:01 AM  Show Profile  Reply with Quote
This is the main board, but this is not a topic to post on, if you want, create a new topic on COPD Information.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
Go to Top of Page

Sandy07
Member

Canada
379 Posts

Posted - Oct 14 2011 :  09:26:22 AM  Show Profile  Reply with Quote
Lea....at the top and bottom COPD support page you will see "post new topic". Just click on it.
Go to Top of Page

Ladybug47
Member

33 Posts

Posted - Dec 03 2011 :  8:45:10 PM  Show Profile  Reply with Quote
quote:
Originally posted by lea

joined today, no one to talk to about this whole thing..scarred..diagnosed 2 years im 44yrs old..thought it just meant i would puff and pant more when i got older so i continued to smoke..been reading up and realised ive wrecked any chance ive got of a future.. cant think!!



Hi there, I just joined today as well. I however was diagnosed 5 yrs ago and felt the same, mine however was deniel, I knew what was in store for me, I helped care for and watched my mother die a very slow death from basically the same desiese. It wasnt until last saturday when I woke with and extream cough, no other symtoms, I fought it for a week, and finally today I broke and went to the ER thinkings it was a weird cold, however I had my first COPD Flare that induced bronchitis. HELLO! its not just shortness of breath anymore...I am 36 yrs old and its setting in. and I like you, have been smoking all this time. I have one smoke left in my pack, and two bags of hard candy to try and help me make it through. I refuse to put my husband, my children and what family I have left through what we had to go through with my mother at such a young age, she passed at 57. ( feels good to get it out!!) Good luck to you, I wish you well, and if you are planning on quiting smoking I hope the journey is a easy one for you ( who am i kidding, theres nothing easy about quitting) but good luck to you, and know that I and looks like many others are here with you!
Go to Top of Page

detail19
Rookie

USA
2 Posts

Posted - Nov 12 2013 :  11:32:44 AM  Show Profile  Reply with Quote
I think I have registered ok - Just testing - diagnosed COPD in 2000 - 100% disabled vet - 72 years old - smoked for 30 years - stopped at about 45
Go to Top of Page

Dave-OH
Administrator

USA
3874 Posts

Posted - Nov 12 2013 :  11:36:55 AM  Show Profile  Reply with Quote
Welcome, please note if you change your email address and do not change it in the system, your subscriptions will be canceled.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
Go to Top of Page

Tray-NC
Rookie

22 Posts

Posted - Jan 18 2014 :  10:26:24 AM  Show Profile  Reply with Quote
Hello everyone! New member here. I'm trying to start a COPD support group at the facility that I work and I'm also working towards a degree. As part of my graduating requirements, I have to propose an interview with a couple of important people. Some of them being the patient, caregiver, lung specialist and healthcare providers. So my question to you would be this, exactly what do you expect from a support group, what would you like to see done in a supprt group and what kind of questions would you have for a support group?
Go to Top of Page

PennyPA
Contributing Member

USA
5755 Posts

Posted - Jan 18 2014 :  12:07:28 PM  Show Profile  Reply with Quote
Tray, just read the questions that are on the main section of this board and you'll see the questions asked by copd patients. Not all copders have or need a caregiver. The healthcare provider would be the same as the lung specialist (pulmo doc) unless you're talking about companies such as Lincare or Apria.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




Go to Top of Page

jmrommes
Contributing Member

1600 Posts

Posted - Jan 18 2014 :  2:09:29 PM  Show Profile  Reply with Quote
Health care providers could include PCP's, nurses, PA's, NP's, RT's, exercise physiologists and a whole batch of other professionals I don't have names for. That's nit-picking with Penny, though, and she's right about everything else. Just scroll down past where you posted on this page and you'll see the sorts of questions people have in support groups. One thing to remember is that the people on this forum are generally quite well informed about their disease and how to cope with it, so we're not very representative of the COPD patient who was just admitted to the hospital or seen by his PCP or pulmo. If you want to know what the ordinary patient wants to know, go to the waiting room of a pulmonologist and talk to those folks. A couple of days ought to give you a good idea.

Jean

Exercise not only lets me live, it enables me to have a life.
Go to Top of Page

Tray-NC
Rookie

22 Posts

Posted - Jan 20 2014 :  4:39:00 PM  Show Profile  Reply with Quote
quote:
Originally posted by jmrommes

Health care providers could include PCP's, nurses, PA's, NP's, RT's, exercise physiologists and a whole batch of other professionals I don't have names for. That's nit-picking with Penny, though, and she's right about everything else. Just scroll down past where you posted on this page and you'll see the sorts of questions people have in support groups. One thing to remember is that the people on this forum are generally quite well informed about their disease and how to cope with it, so we're not very representative of the COPD patient who was just admitted to the hospital or seen by his PCP or pulmo. If you want to know what the ordinary patient wants to know, go to the waiting room of a pulmonologist and talk to those folks. A couple of days ought to give you a good idea.

Jean

Go to Top of Page

Tray-NC
Rookie

22 Posts

Posted - Jan 20 2014 :  4:40:11 PM  Show Profile  Reply with Quote
Please forgive me if this posts before completion. I'm having a hard time posting for some reason. Ladies, no disrespect intended and thank you for your response. Please allow me to introduce myself. My name is Terrie and I am a RRT by profession. I work with COPD patients daily at the ER's that I work. First off, I could would with PEDs but I prefer adults and my passion is COPD pts. I have read all kinds of research and attended support group meetings but I still feel that there is so much more for me to learn on the subject. I've read through the forums and it has provided some highlights but I hope to learn more. If there's something that I can shed light on or maybe answer then please ask. I'm pretty straight forward shoot from the hip kinda person and being blunt and not picking is OK with me. Thank you all for taking your time to read and respond.

Edited by - Tray-NC on Jan 20 2014 5:00:38 PM
Go to Top of Page

Bo H
Contributing Member

USA
1118 Posts

Posted - Jan 20 2014 :  9:58:13 PM  Show Profile  Reply with Quote
Tray, If you want responses to this you need to post on the main board. Just post under new topics.

Bo in Al
Go to Top of Page

Joyful66
Rookie

USA
1 Posts

Posted - Apr 21 2016 :  2:36:22 PM  Show Profile  Reply with Quote
Hi this is Joyful66 ,
I will give a brief intro of myself & medical issues Iam dealing with .
My husband & I were on vacation back in 2010 . He had to rush me to
the ER on 7/10/10 . I was diagnosed with CHF(Congestive Heart Failure
stage 4 end stage death , & COPD Mild Empysema stage 1 ) . They said
I had 4 days to live ......anyway Iam still here !
The CHF is now stage 1 mild will explain more later how its been reversing !
Now this past January I got a sinus infection which lasted till about
the end of February . Began using the CPAP again on March 4th my O2 level
began dropping so I felt I needed to use that CPAP & get it back up asap .
April 5th another sinus infection has creeped upon me . I will see my PCP
(Primary Care Physician ) this friday 4/22/16 .
I want to Thank You Dave OH for posting & sharing about The Huff Cough
Technique . I began using it day before yesterday and the phlem is loosening .
I put this technigue instructions on index cards around our home ( an RV a Jayco
Eagle 5th wheel ) . I will see my RT next thursday 4/28/16 & share with him about
this technique .
It is nice to meet all of you I look forward to sharing more in the future here.
And meeting & making new friends here . Iam grateful this forum is here it is such a
help . I have spent the past couple of days viewing different sections of it I find it will
be a big help to myself and to others here . -Joyful66
Go to Top of Page

PennyPA
Contributing Member

USA
5755 Posts

Posted - Apr 21 2016 :  3:17:03 PM  Show Profile  Reply with Quote
Welcome, Joy. Are you on any meds for the COPD? It doesn't sound like it's too bad since I didn't see mention of a pulmonary doc in your post. How long have you had CHF? That's not a problem that shows up all of a sudden so you must have had signs before the trip to the ER. I assume you have a pulse oximeter since you mention your sat levels have been dropping.

We, too, live in our RV. We've been traveling around this great country of ours since I had my lung surgery at Duke in 2008. And a beautiful country it is, indeed... with so many nice, friendly people wherever we go.

If you answer this, you might want to start a new thread that will show up below all the "stickies" since that's where we all go to see what's new.

Read and enjoy this forum. We're like one big scattered-across-the-country family.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




Go to Top of Page
  Previous Topic Topic Next Topic  
 New Topic  Reply to Topic
 Printer Friendly
Jump To:
COPD Support Discussion Boards © Copyright COPD-Support, Inc. Go To Top Of Page
Snitz Forums 2000