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Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 24 2007 :  11:57:54 PM  Show Profile  Reply with Quote
Sandy has suggested someone develop a FAQ type document of common terms and abbreviations. I would love for someone to help me at this effort. How about we use this thread as a wiki - each person can contribute terms and definitions. I will compile them into a FAQ for people on either the help bar and or on the COPD Support Forum.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com

PennyPA
Contributing Member

USA
5819 Posts

Posted - Jan 25 2007 :  09:12:10 AM  Show Profile  Reply with Quote
SOB = short of breath (and not your Ex )
PFT - Pulmonary Function Test
FEV1 = Amount of air forcefully exhaled in 1 second
Pulmo = Pulmonary (lung) doctor
PCP = Primary Care Physician (Family doctor)
TX = Transplant
dx = diagnose
LVRS = Lung volume reduction surgery
VATS = video assisted thoracic surgery
VAS = video assisted surgery
script = prescribed (as in meds) or the prescription the doc writes
SO = significant other
DH = dear husband
DW = dear wife
sil = sister-in-law
bil = brother-in-law
pred = prednisone


You mean like that, Dave? What's a "wiki"?

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS





Edited by - PennyPA on Jan 25 2007 12:34:43 PM
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Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 25 2007 :  09:20:17 AM  Show Profile  Reply with Quote
http://en.wikipedia.org/wiki/Wiki

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 25 2007 :  09:46:19 AM  Show Profile  Reply with Quote
Dave,

Here is a copy of what we send the new folks on the list. If you want to use this on the Forum, go ahead and there are links to more.

Carolyn-Mi

<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
ABG Arterial Blood Gasses. This is a blood test that is given to determine
a number of things but it is the only test that is commonly used to
determine the Carbon Dioxide content of the blood. The test is usually
taken with a needle into the wrist area and much more difficult to do.
Consequently, it has the reputation for hurting. Doctors use this test to
determine whether an individual is a retainer or not.
<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
ALPHA-A1AD Alpha-1 Antitrypsin deficiency (A1AD) is a genetic disease of
the liver and lungs. It results from a lack of the Alpha-1 Antitrypsin
(AAT) protein in a person's blood, which protects the lungs from germs,
dust, air pollution, cigarette smoke and other inhaled irritants. Without
an adequate supply of AAT, substances in the white blood cells can damage
the tissues of the body. In adults, A1AD often leads to early onset
emphysema that affects the lower lobes of the lung but can also cause liver
disease. Because A1AD is a product of genetics, those that are diagnosed
with emphysema or COPD at an early age should have a simple blood test to
determine if that is the cause of their affliction. If so, some of the
medical procedures are different in dealing with the affliction.
<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
BIPAP, CPAP, DPAP - P.A.P." stands for positive airway pressure The
importance of these machines is not only that they assist in the physical
needs for breathing but also help remove excess CO2 from the system.
BiPAP stands for BiLevel Positive Airway Pressure. Your BiPAP machine
provides 2 sets of pressure prescribed by your physician. There is a
pressure set to assist you when breathing in (inspiration) and when
breathing out (exhalation). These pressures keep the airway from collapsing
so your lungs will receive the oxygen they need.
BiPAP ST works the same as BiPAP, but also has a backup respiratory rate
incorporated. This means that the machine also supplies the patient with
forced breaths.
CPAP machine supplies a set amount of positive pressurized flow through a
hose connected to the nasal airway. The set pressure is prescribed by your
physician. The ressure keeps the airway from collapsing. Relief of airway
obstruction is immediate. Your lungs will receive the oxygen they need and
you will sleep much better.
DPAP stands for Demand Positive Airway Pressure. This machine will sense
whether or not the patient is taking a breath. If the patient has not taken
a breath in 8 seconds, the DPAP machine will sense this and give a breath
at whatever pressure flow is necessary to move the air into the lungs.
Indication for DPAP usage is intolerable use of CPAP.
<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
CHF Congestive Heart Failure. Simply stated, CHF is any condition which
refers to the diminished ability of the heart to carry out its function
properly. There are many causes and many diseases which cause the condition
which is much more prevalent with older folks. Some individuals with COPD
find themselves afflicted with conditions which make them susceptible to CHF.
<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
COPD Chronic Obstructive Pulmonary Disease COPD is why we are all here.
While some medical authorities do not include asthma in the definition, it
is included in others and helps add to the confusion of the lay person.
COPD is actually a loosely used term by the medics these days to describe a
variety of ailments including emphysema, chronic bronchitis and some forms
of asthma. It is considered as chronic and progressive which gives it the
awful reputation of being the beginning of the end. Those of us who know
better realize that while there is no known cure at the present time, such
a cure is not out of the realm of possibility. In the meantime, it is
prudent to do those things that we can do to maintain as high a quality of
life as is possible. We can do that only through being proactive in our own
medical care working in concert with our medical advisors, stopping
smoking, exercise (preferably in some pulmonary rehab program and
subsequent maintenance program) and a number of lesser things.. If you are
interested in learning more about our disease, look at our links page for
the best of the best at


and a listing of web pages maintained by a number of our subscribers at

www.copd-support.com

<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
CRS (Can't Remember Stuff - or any other word beginning with S_____)
<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
FEV1 - FEV1 (Forced Expiratory Volume after 1 second) is one of many
measurements that are determined during a Pulmonary Function Test (PFT) The
official definition says that it is the volume of air exhaled after one
second from the beginning of the measurement. It is expressed in a full
number which is then given a percentage based on how well a normal person
of similar age, sex and weight would do. It is normally taken a second time
after using a rescue inhaler like albuterol to see what percentage of
increase is obtained with medication. In common usage, while not totally
accurate, it has become to be a measure of lung function percentage. For
that reason you will see folks that say they have 46% lung function or 13%
lung function. While those numbers are certainly important, they do not
tell the whole picture because this is just one measurement. In addition,
two people with the exact same FEV1 may behave very differently. One may
not be able to walk to the bathroom without assistance and the other
reporting rave results from pulmonary rehab. There are a number of
references that discuss the PFT. A good starting point would be

www.cystic-l.org/handbook/html/pft_s_explained_for_you.htm



or

http://jan.ucc.nau.edu/~daa/lecture/pft.htm

<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
HEPA-(High Efficiency Particulate Air) Usually refers to a filters or masks
for air filtering systems, air conditioner returns, air circulation
systems, face masks and the sort. t is of a much higher rating for
filtration than other systems and consequently filters the air better.
<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
IMHO (In My Humble Opinion) Says what it means. I recognize that this may
not be the school solution but I believe that & Often used by the polite to
tell others that they don't know what they are talking about LOL
<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
LOL (Lots of Laughs or Lots of Love depending on context used)
<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<~>~<
LVRS (Lung Volume Reduction Surgery) Surgery which removes part of the lung
or lungs. This concept uses the theory that the reduction of the lung
allows room for the good portion to expand and work more efficiently. This
is a major surgical procedure which has resulted in dramatic improvement
for some and a reduction in lung function in others. It is presently being
studied to determine the appropriate criteria for selection as well as
evaluating improvement from pulmonary exercise as compared to LVRS. This
study called NETT or National Emphysema Treatment Trials is explained in
detail and provides locations for the centers at

http://www.nhlbi.nih.gov/health/prof/lung/nett/lvrsweb.htm

<~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~<~>
MDI (Measured Dose Inhaler) There are many varieties and brands. This is
just a generic description for all of them.
<~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~><~>
O2 (Oxygen) Auxiliary oxygen use usually expressed as Number of Liters Per
Minute/hours per day/days per week. For example 2L 24/7.
<~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~><~>
PCP (Primary Care Physician) Usually a physician who practices in general
medicine or family medicine. In HMO language, the PCP is the doctor that is
responsible for the patients care and appropriate referrals.
<~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~<~>
PFT (Pulmonary Function Test) A vital test for all who are afflicted with
any pulmonary disease as it is the real measure of the lung function and a
diagnostic tool to determine the proper course of medication. The test
takes about an hour but is non invasive primarily just breathing in a
variety of tubes in different ways. The test results include Pulmonary
Mechanics (one of which is FEV1 which was described above), Lung Volume,
Diffusing capacity and other measurements including ABG, PH, PaCO2, PaO2,
and SaO2 which is a lot of gibberish which means you should check out one
of the references on PFT if you want to know more. A good place to start is

www.cystic-l.org/handbook/html/pft_s_explained_for_you.htm

or

http://jan.ucc.nau.edu/~daa/lecture/pft.htm

<~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~><~>
SATS (Saturation Level as determined by oximeter) Sometimes also called
Stats. Refers to the oxygen level which should remain above 90 when
measured by oximeter or 55-60 mm Hg when measured by arterial blood gas
test of PaO2. Yep, that is the thingy that they put on your finger = oximeter.
<~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~><~>
SOB (Short of Breath) Do we need to say more?
<~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>~<~><~>
Of course there are a great many other abbreviations and acronyms used
concerning our affliction. In the event you are looking for another which
is not listed here try



http://members.tripod.com/noairtogo/gloss.htm#acronyms
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sandy
Member

USA
132 Posts

Posted - Jan 25 2007 :  11:41:26 AM  Show Profile  Reply with Quote
That's what I'm talking about. Penny's is great as a quick reference when you're reading the posts as a newcomer. Dave..yours is great for a really detailed explanation. When I first came on I didn't even know what "SOB" was, so Penny you may want to add that one on your quick ref for acronyms. Sandy
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PennyPA
Contributing Member

USA
5819 Posts

Posted - Jan 25 2007 :  12:38:49 PM  Show Profile  Reply with Quote
Carolyn, the FEV1 is the amount of air (not gas) exhaled IN the first second ...not gas exhaled after the first second.

"Forced Expiratory Volume in 1 second (FEV1) is the volume of air expired in the first second."


****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 25 2007 :  12:41:10 PM  Show Profile  Reply with Quote
I made the change, but since air is a gas it is technical. I also change expired to exhaled to make it clearer to the uninformed reader.

I plan on doing some formatting when all is done. Penny, I moved SOB to the top of your list and put it in bold with a smile (not your Ex).


Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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Carolyn-Mi
Administrator

607 Posts

Posted - Jan 25 2007 :  1:47:31 PM  Show Profile  Reply with Quote
That was copied directly from the web-site I believe. It was written a long time ago and the only changes I have made since it was sent to me is to make sure links are updated <g>

COPD Support
http://www.copd-support.com
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Vic
Member

USA
60 Posts

Posted - Jan 25 2007 :  1:55:30 PM  Show Profile  Reply with Quote
Dave -- When Jackie (Blossom) returns, she is away for now, we have to ask her for the cross-reference list of COPD drugs that she created. That would be a good addition the the FAQ section. She has it posted on her site http://www.copdcanada.ca/ and I am sure she would not mind if you picked it up for here. -- Vic

Vic / Long Island
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Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 25 2007 :  5:25:06 PM  Show Profile  Reply with Quote
What I will do is set it up in a web page. There will be a table of contents with links to each description.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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MaryAZ
Member

USA
52 Posts

Posted - Jan 25 2007 :  8:52:53 PM  Show Profile  Reply with Quote
Vic's suggestion is great. I use that sheet so many times. I have a hard copy.

Here are two more links you can use or not. This link is coming up with definitions but click on the 'A'where it says "Abbreviations & Acronyms" and it will take you right down the list. I have always liked this one. Actually I like the whole website.
http://noairtogo.tripod.com/gloss.htm#A

Here is a PFT Quick Reference.
http://noairtogo.tripod.com/pft.htm

Maybe someone should keep notes of the 'Things To Do When Starting A New COPD Forum'. Then won't have to figure it out as you go. I almost feel like I did this once.

Mary
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Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 25 2007 :  10:03:16 PM  Show Profile  Reply with Quote
OK. Here is the page I am working on. I have taken all of Caro's info and made it nice. Looking to build on it in the future. Feed me
http://copdforum.portalone.us/html/terms.html

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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Colleen-Pa
Member

USA
78 Posts

Posted - Jan 26 2007 :  08:43:59 AM  Show Profile  Reply with Quote
Dave, the link is not working for me Never mind, just clicked it again and it works sorry

Edited by - Colleen-Pa on Jan 26 2007 08:44:53 AM
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sandy
Member

USA
132 Posts

Posted - Jan 26 2007 :  10:27:00 AM  Show Profile  Reply with Quote
Dave: I looked and it's excellent. It looks so professional and official, like the work of a high paid webmaster. And you did it in such a short time. I'm amazed and thank you for your fine work and also Penny and Carolyn. I will constantly refer to it. I see great things happening for this website as the design, content, easy navigation and credibility is heads above some of the other ones that I have seen. When I look at a website that seems to have been designed by a two year old I don't quite trust the information provided. I also am grateful to the moderators of this forum because it just seems to have a tone and vibe to it that makes one comfortable. I can't even go to the Intl forum any longer because it makes me cringe with the insults, anger and intolerance that flies back and forth on a regular basis. Thank you once again for all your hard work and for saving my life. Thank you, Sandy
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Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 26 2007 :  10:54:25 AM  Show Profile  Reply with Quote
Wait - there is a new version in the works. I am working with the designers on testing. It will be even nicer to look at. Just FYI, I have done web design for a while, and it is a sideline of my business. I use top tools. I really need to change my web portal web site http://lungs.portalone.us - it has kind of grown out of control. Needs a tune up.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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PennyPA
Contributing Member

USA
5819 Posts

Posted - Jan 26 2007 :  12:03:20 PM  Show Profile  Reply with Quote
David! Are you telling me that just as this one is picking up and people are "knowing" where to post and are happy with it, you're going to CHANGE IT?? Oh no, you don't REALLY mean that...do you?

Darn! It's hard to keep those who like to play on the puter under control sometimes.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




Go to Top of Page

Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 26 2007 :  4:18:16 PM  Show Profile  Reply with Quote
Not yet. All I am going to do is put in a new version. It will probably be a few months before I get a beta and then will test it first. Don't worry - same place, different face

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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MaryAZ
Member

USA
52 Posts

Posted - Jan 26 2007 :  8:56:40 PM  Show Profile  Reply with Quote
Dave; I am not sure if you are talking about 'your' page or this forum here. If it is this forum, Penny, let him try. This is still not as smooth to get around as the others I go to. This seems like a really good setup but not real friendly to move around in yet. There are things I like but I don't like coming in and checking what I have and have not read. I am patient.

Mary
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Dave-OH
Administrator

USA
3961 Posts

Posted - Jan 26 2007 :  9:20:38 PM  Show Profile  Reply with Quote
Try the active topics on the top of the page. It will show you all the items since your last visit.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info

Chat room http://chat.copd-support.com
Mobile chat room for pads and phone Chat room http://chat.copd-support.com/m

My Site: http://lungresources.com
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