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 O2 Support & Lung Function Testing
 Duct tape?
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DonnaB0216
Member

USA
95 Posts

Posted - Apr 14 2015 :  08:30:08 AM  Show Profile  Reply with Quote
I can't seem to keep my cannula on at night while I am sleeping. I wake up with the nose piece under my chin and know I am moving it there in my sleep. Any suggestions short of duct tape?

Donna

Daisy
Rookie

USA
23 Posts

Posted - Apr 14 2015 :  12:39:16 PM  Show Profile  Reply with Quote
This happens to me all the time too, unfortunately I have not come up with any soloutions either.
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PennyPA
Contributing Member

USA
5892 Posts

Posted - Apr 14 2015 :  2:19:37 PM  Show Profile  Reply with Quote
Band-aids? Actually I have the same problem but I just put it back in place and go back to sleep. I've found mine usually just goes to my upper lip and I can wiggle it right back where it belongs without even waking up. How do you wear your cannula when you go to bed...over your head or up the front? And do you pull the slider thingy tight or keep it loose?

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Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

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DonnaB0216
Member

USA
95 Posts

Posted - Apr 15 2015 :  08:26:25 AM  Show Profile  Reply with Quote
Penny, I loop it around the bedpost at the head of the bed. That seems to work for me as far as getting tangled up in it. I have the slider thingy tight and bought a soft hose cannula. It's not uncomfortable, I just seem to be taking it off for some unknown reason. I'm no longer waking as many times in the night to sit up and breathe which is a good thing but it also means I don't wake up and realize I need to put it back on. I did finally figure out where to place my concentrator in my office so the tubing isn't on the floor and tangled in my chair all day! Of course, I still forget it is on and jerk my face off every time I leave my office bit being a clutz is pretty much in my DNA

Donna
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PennyPA
Contributing Member

USA
5892 Posts

Posted - Apr 15 2015 :  11:10:04 AM  Show Profile  Reply with Quote
Oh Lordy, I did the same thing when I was working while on O2! LOL!! I used a portable tank and we all used to laugh when I'd get up, move more than 7' and then very abruptly be returned to my chair by the hose.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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DonnaB0216
Member

USA
95 Posts

Posted - Apr 15 2015 :  12:05:49 PM  Show Profile  Reply with Quote
I have a portable concentrator and 25 feet of hose. I can slip across the hall to the copy machine and into the office next door. I'm honestly not sure why I am on oxygen 24/7. My numbers dip at night but I can stay in the 90's during the day on room air. I just follow doctor's orders :)

Donna
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PennyPA
Contributing Member

USA
5892 Posts

Posted - Apr 15 2015 :  7:53:09 PM  Show Profile  Reply with Quote
I don't want to go against your doctor but if you can keep your sats up in the mid 90s while at work, there really isn't any need for O2 while you're there. Perhaps if you are more active at home, you might need it but not at work.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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1coolbreeze
Rookie

USA
21 Posts

Posted - Apr 15 2015 :  9:06:25 PM  Show Profile  Reply with Quote
Offering advice against someone's doctor probably isn't a wise thing to do.
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Dave-OH
Administrator

USA
4134 Posts

Posted - Apr 15 2015 :  9:20:12 PM  Show Profile  Reply with Quote
No, but it is a topic to discuss with the doctor.

Dave, Forum Administrator
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DonnaB0216
Member

USA
95 Posts

Posted - Apr 16 2015 :  08:31:59 AM  Show Profile  Reply with Quote
I agree Dave, every time I have seen her has been either in the hospital or right after a cold (not a bad one but I wasn't 100%). I need to see her when I am healthy. I have an appointment in June and will have a PFT then. Hoping her orders change then but in the meantime I will follow her orders as they stand. I'm thinking at the very lease I will be allowed to only use my concentrator during the day when I feel I need it. The good news is that I managed to leave my cannula on all night last night! Until going on oxygen I had experienced horrible muscle cramps in my feet, legs, hands and even my back. I was told my muscles may have needed oxygen. Apparently they did because the cramps are all but gone.

Donna
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PennyPA
Contributing Member

USA
5892 Posts

Posted - Apr 16 2015 :  11:22:37 AM  Show Profile  Reply with Quote
Unfortunately, the PFT won't indicate the necessity (or not) of O2 during the day. Ask for a 6 min walk test. I assume you have an oximeter to be able to determine when you need O2 if she says that's the way you can do it.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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DonnaB0216
Member

USA
95 Posts

Posted - Apr 16 2015 :  11:57:43 AM  Show Profile  Reply with Quote
Yes, I have an oximeter. I even dropped by her office and the nurse checked it for accuracy. What's the test where you blow into a handheld gadget and then they give you albuterol and you blow again? I scored a 30 on that but it is the ONLY test I've had other than x-rays and CT scan.

Donna
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PennyPA
Contributing Member

USA
5892 Posts

Posted - Apr 16 2015 :  1:29:58 PM  Show Profile  Reply with Quote
Then how did she determine you needed O2 at all? A 6-min walk test is where they walk you for 6 minutes, without O2, and see if your sats drop or not during that time. It is generally accepted that if they drop to 88 or below while you're walking, you would need O2 while up and about. Many of us need O2 at night but that's usually determined by an overnight sleep test. Have you had the blood test called an ABG test where they draw blood from the artery in your wrist? A bit painful if not done by an experienced tech but it is a specialized test that must be read immediately. Usually taken in a hospital where they have the facilities to process it.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




Go to Top of Page

DonnaB0216
Member

USA
95 Posts

Posted - Apr 16 2015 :  2:46:38 PM  Show Profile  Reply with Quote
I had ABG in the hospital and it was normal and you are right it WAS painful. I was released from the hospital on 12/16 and proceeded to have two minor exacerbations between then and my visit with the pulmonologist on 3/4. I was still recovering from the second one when I saw her and my sats were 88 in her office. I think she justified the oxygen to BC/BS based on that and my sats while hospitalized. I will feel much better about all of this once I have more comprehensive testing. Ignorance is not bliss!

Donna
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Diann-NY
Member

USA
58 Posts

Posted - Apr 29 2015 :  8:29:20 PM  Show Profile  Reply with Quote
Hello Everyone. Sorry that I have been gone so long, but much has happened. Looong story, but everything is okay for now.

Just wanted to reply to cannula mess-ups. I found that I have better luck keeping it in my nose all night if I tighten the double hose behind my head instead of under my chin. I place the single part of the hose, loosely, just under the corner of my pillow and it doesn't seem to get in the way of tossing and turning. This gives my chin and ears a rest and I change the cannula when I can no longer keep it snuggly against my head.

Glad to be back and will try to contribute more in the future.

Diann
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DonnaB0216
Member

USA
95 Posts

Posted - Apr 30 2015 :  3:03:04 PM  Show Profile  Reply with Quote
Thanks Diann, I will try that. I have a hard time even wearing jewelry and I guess that's why the cannula bothers me at night. I woke up the past 2 mornings and my cannula was neatly lying on my bedside table and my concentrator was turned off. I am the ONLY one that could have done that and I don't know why I keep doing it. None of it is uncomfortable to me during the day.

Donna
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BarbaraIN
Rookie

USA
6 Posts

Posted - May 14 2018 :  4:12:47 PM  Show Profile  Reply with Quote
I am fortunate and only need to use oxygen at night. This is a very vain question. How can I keep the tubing from leaving deep marks on my face? I am older and my skin doesn't have the elasticity it once had. I hate going to work or doing things in the morning with the deep marks on my cheeks. I use the soft tubing bit doesn't seem to help much. Any suggestions?
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