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 Eligible for Spiration endobronchial valve implant
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LeonardPhd
Rookie

1 Posts

Posted - Mar 04 2017 :  6:25:08 PM  Show Profile  Reply with Quote
Hello-My name Leonard, 74 year old and have COPD. I had to move from Mexico City to the sea shore. O2 density is higher on the sea shore. I am on O2 compressed 24/7. I cannot work nor care for myself. I am a potential candidate for Spiration endobronchial valve implants. Have you or any member of your family received coil valve implants? What is or was your/their experience?

jmrommes
Contributing Member

1628 Posts

Posted - Mar 04 2017 :  9:00:53 PM  Show Profile  Reply with Quote
The spiration people should be able to get some of the people who've had the procedure to talk with you. Ask them and you'll get information from people who have boots on the ground. The various valves, vents and coils have had varying degrees of success, depending on the parameters the clinical trials set for the procedure. Best bet is to talk with people the Spiration folks can put you in touch with.

Exercise not only lets me live, it enables me to have a life.
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Lora-WV
Member

USA
49 Posts

Posted - Mar 05 2017 :  12:32:29 PM  Show Profile  Reply with Quote
I had the first set of coils (10) in my upper right lobe in Sept. of 2014, the second set I my lower left lobe (13)
In March of 2015. I could tell a slight difference but because my lungs are damaged throughout there was
little difference. I do think that the coils have helped with the lack of flarir ups as I haven't had one in quite
sometime and my levels haven't changed too much.
Leonard I think that if the damage is located in a certain area instead of throughout you may see a huge
difference. Good luck to you!
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Cindi-TX
Member

USA
52 Posts

Posted - Mar 19 2017 :  9:43:12 PM  Show Profile  Reply with Quote
I posted in January that I had the Pulmonx endobronchial valves in as part of the Liberate trial, they are very similar in function to the Spiration valves. I had a glitch or two, but overall I'm very happy with it all.
Frankly I was surprised that there seemed to be 0 interest in the results on this forum, as I am on another forum where there is a lot of interest.
If anyone has any specific questions, I will be more than happy to answer them as they pertain to my experience
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Sokcap48
Senior Member

USA
759 Posts

Posted - Mar 20 2017 :  6:42:36 PM  Show Profile  Reply with Quote
Cindi-TX
There is a lot of discussion just two threads down. You might get more interest there. I also tried but did not qualify and got a double lung transplant.

Paul-Ut
The Journey Continues.
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