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Smitholm
Rookie

8 Posts

Posted - Oct 09 2017 :  4:25:05 PM  Show Profile  Reply with Quote
Getting ready to take the plunge. Any unbiased reviews out there, or are they all advertisements in disguise? Thanks.

tsainta
Contributing Member

USA
1675 Posts

Posted - Oct 09 2017 :  7:52:46 PM  Show Profile  Reply with Quote
Number 1 question: How much oxygen do you need? If you start from any other point you are putting convenience ahead of therapy.

Tony-CA

50% of dealing with COPD is common sense.
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jmrommes
Contributing Member

1703 Posts

Posted - Oct 09 2017 :  8:59:21 PM  Show Profile  Reply with Quote
And you're quite likely to make a very expensive mistake. Besides knowing how much O2 you require, you need to do a lot of research into POCs. Going in cold almost guarantees a poor choice that won't work for you.

Exercise not only lets me live, it enables me to have a life.
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Smitholm
Rookie

8 Posts

Posted - Oct 10 2017 :  2:13:27 PM  Show Profile  Reply with Quote
I understand both of your replies and agree completely. However, my situation is that I have a PFT coming up in a bit, and I thought I'd do a little homework beforehand so I'd be better prepared to understand what the results mean in terms of a POC. Now, given those facts, do you have any further advice?
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Dave-OH
Administrator

USA
3961 Posts

Posted - Oct 10 2017 :  5:27:23 PM  Show Profile  Reply with Quote
The only part that has meaning is the DLCO and if you do a 6 minute walk or sleep study. Most of the PFT is about moving air. O2 sats from a 6 moniute walk are the factor for O2 during exercise. DLCO is one for while inactive.

Dave, Forum Administrator
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Sokcap48
Senior Member

USA
812 Posts

Posted - Oct 10 2017 :  5:37:19 PM  Show Profile  Reply with Quote
You can certainly start reading about the different units, the more you know the better, but know that pulse rating numbers are just that! They could be labeled x,r,t.a,g and have as much meaning the amount of 02 put out on one POC at setting 3 is NOT the same as the 02 put out at setting 3 on another POC. There are some fairly good"reviews" out there you can read. Every manufacturer has the best machine on the market---according to them and only them. Find out how much 02 you need now and when you buy a machine, buy one that will put out more than you need now! Buy for the future. This is a progressive disease and with few exceptions you will get worse not better.

Paul-Ut
The Journey Continues.
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Zellie
Member

USA
41 Posts

Posted - Oct 10 2017 :  5:48:02 PM  Show Profile  Reply with Quote
I ended up buying 2 has time went on I could no longer use a pulse dose. I had to get the Oxlife which has 3 liters per min. continuous.

Make sure you test before you buy. I still feel better when using the tanks though, but the POC is convenient when you need to recharge while out or visiting.

Zell
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jmrommes
Contributing Member

1703 Posts

Posted - Oct 10 2017 :  8:54:49 PM  Show Profile  Reply with Quote
As Dave said, your PFT isn't going to tell you anything about your need for O2 or your O2 saturation levels or usage. The things you need to know are how much O2 do you need to be comfortable doing a variety of activities and must it be continuous or can you use pulse dose. Only you know what those activities are, so you have to define them and then determine what your O2 saturation level needs to be for you to be comfortable doing them.

Then you need to research the various units available and determine if there are any that could possibly meet your needs. The best tool available is at www.pulmonarypaper.org, where you should read everything written by Ryan Diesem. Of particular interest will be the May/June 2017 issue where he compares the major units. Once you've done that twice or three times, you will probably have enough information to begin to ask the questions that are necessary.


Exercise not only lets me live, it enables me to have a life.
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tsainta
Contributing Member

USA
1675 Posts

Posted - Oct 11 2017 :  12:41:03 AM  Show Profile  Reply with Quote
Jean is exactly right.

Tony-CA

50% of dealing with COPD is common sense.
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Jocopd
Rookie

USA
22 Posts

Posted - Oct 11 2017 :  1:38:10 PM  Show Profile  Reply with Quote
Was wanting to read more info but the link www.pulmonarypaper.org does not appear to be working. Although I looked at all the related links, none seem to be valid. They are all either "under construction" or no longer valid.
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Zellie
Member

USA
41 Posts

Posted - Oct 11 2017 :  1:54:21 PM  Show Profile  Reply with Quote
Here is a link to the many choices you have for portable oxygen.



http://www.directhomemedical.com/oxygen/portable-oxygen-concentrator-comparisons.html

Zell
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Jocopd
Rookie

USA
22 Posts

Posted - Oct 11 2017 :  2:46:14 PM  Show Profile  Reply with Quote
I was interested in the previous link in the other post as it sounded like something that had been published and researched. Was just letting them know the link wasn't working. At least for me. Tried a couple browsers on different computers.
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PennyPA
Contributing Member

USA
5819 Posts

Posted - Oct 11 2017 :  4:05:56 PM  Show Profile  Reply with Quote
The " www.pulmonarypaper.org " site is undergoing renovations and upgrading right now. Bookmark it and check back in a couple of days. Jean's link has a period after it so it won't work properly.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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jmrommes
Contributing Member

1703 Posts

Posted - Oct 11 2017 :  5:12:33 PM  Show Profile  Reply with Quote
Thanks, Penny....I didn't realize my link wasn't working.

Exercise not only lets me live, it enables me to have a life.
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faybees
Member

USA
83 Posts

Posted - Oct 14 2017 :  10:53:25 AM  Show Profile  Reply with Quote
Penny, what do you use when you are on the road? When I went on vacation to NC, we drove down and I rented a portable for using in the van. I use continuous oxygen and the machine was pulse but just sitting in the van, it worked out great. Much better than hooking up a new tank every couple of hours. I could not walk around with it, I used my tanks for that.
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PennyPA
Contributing Member

USA
5819 Posts

Posted - Oct 15 2017 :  10:17:49 AM  Show Profile  Reply with Quote
faybees, I only use O2 at night and have my own concentrator. When I need a portable (altitudes or during that exacerbation, for instance), I just fill my own tanks from the concentrator.

****************************************************************
Do Not Regret Growing Older. It is a Privilege Denied to Many

You canít change the past but you can ruin the present worrying about the future.

The Bad News: Time flies as you get older.
The Good News: Youíre still the pilot.

Penny's Lung Volume Reduction Surgery

And Our Travel Blog After LVRS




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