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 O2 Support & Lung Function Testing
 Nasal Cannulas don't fit
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Jan-KS
Member

USA
77 Posts

Posted - Jan 10 2018 :  6:20:27 PM  Show Profile  Reply with Quote
I'm having increasing problems with the nasal cannulas provided to me by Lincare and the ones I purchase online. All are made by the Salter company and - over the years - have become slightly more comfortable but they still fall out of my nose ALL THE TIME. The prongs are set slightly too wide apart for my small nose and the prongs are not long enough. They are made of a thicker plastic than the ones used in hospitals. They also rub the back of my ears raw.

I found an old one sent home with me from the hospital and the one they use is EXACTLY what I need - it's narrower and the prongs are thinner but longer. The problem is that it's part of a 50 ft hose - which is too long to add to my already 70 ft of tubing. So I need a hospital style cannula with only a 7 ft hose.

Does anybody know of another brand other than Salter? Any brands that fit the description I want? It is becomming a big problem since my O2 falls off during sleep unless I tighten it up so tight that I pinch the back of my ears and will have blisters by morning. If I wiggle my nose or mouth too much during the day - it also falls off. HELP!

Jan C

sslei
Member

86 Posts

Posted - Jan 11 2018 :  11:12:16 AM  Show Profile  Reply with Quote
Jan I just got some from directhomemedical.com I got a box of 25 they are a soft hose and cannula $ 1.45 each and free shipping. If you get 50 they are $ .95 each I think. The nose prong is about 1/4 inch and just what I wanted , I was having to clip others Off and they were not soft. The only thing I don't like is the slider that tightens it slides down and does not stay in place if I move around much , but I also found that on others , and I think that there is a fix somehow for that.

Have seen you posting lately I wondered what happened to you , I think I told you one time I was from around Topeka also. I have not been able to go to a reunion the last couple of years. and lost a sister just a couple of weeks ago and was unable to attend the service.
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sslei
Member

86 Posts

Posted - Jan 11 2018 :  11:18:03 AM  Show Profile  Reply with Quote
Jan the prongs may be a bit longer than I/4 inch.
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Jan-KS
Member

USA
77 Posts

Posted - Jan 11 2018 :  3:04:18 PM  Show Profile  Reply with Quote
Thanks sslei - I will check out directhomemedical and see if they have what I need - if the prongs are longer than 1/4 inch that is good since the shorter prongs just fall out of my nose. I'm sure the hospital was using the cheapest tubing possible since it would never be used very long but the cannulas fit my nose so well I would forget I was on oxygen.

I am still around and still in Topeka. I'm so sorry about your sister and not being able to make it back for the funeral. Perhaps if you do visit Topeka again we can get together for lunch or coffee!

What was going on is that I actually was healthier than I'd been in a long time - thanks to finally getting the right drugs and recovering from the H1N1 virus so I guess I didn't need this message board as badly as I did when I was ill - which sounds pretty selfish of me! My dear mother also passed away which I feel partly responsible for - but not being a caretaker lowered my stress and gave me time to take care of myself.

I'm back because I can tell I'm steadily getting worse - and my long-time pulmonologist that got me so healthy recently died in a small plane crash. I have a new pulmonologist that seems on the ball but I dearly miss my Dr. Leeds and his staff who sincerely cared about each patient's well being and worked constantly with insurance companies that didn't want to pay for certain drugs or procedures. His rapid response to completing my disability paperwork got me qualified in under 3 months (my PFT numbers more than qualified me - and had for years but they are so picky about the paperwork). 10 yrs ago they told me that statistically my life expectancy was 5 yrs. Now they still say 5 yrs but I'm determined to make it another 10 yrs at least. Dr Leeds really wanted me on a transplant list and I was initially approved for testing by St Louis Barnes Jewish Hospital but after reading up on all their literature I knew financially we could not afford to move there for up to 2 yrs nor would we want to leave our children (my husband has had 8 heart attacks - caring for me post-transplant would be way too stressful. Plus there is only a 50% survival rate after 5 yrs which is equivalent to my statistical lifespan estimate if I keep my own lungs so to me it make no sense even if it greatly improves my quality of life. In fact I was in Pulmonary Rehab with an acquaintance 3 yrs ago that was on the transplant list for Oklahoma. He was so much healthier than I was - and in top physical condition. Unfortunately he recently died from a rejection episode - so he didn't even get his 5 yrs. That has me really down on transplants.

Hope you are doing well and hope to see you in Topeka sometime! At one point last year I heard that KU Medical Center in Kansas City was thinking of getting back in the transplant business (they had even stopped doing heart transplants) and that they had hired a new team of pulmonologists so they could start doing lung transplants - but so far they haven't gotten it together. They also bought St Francis Hospital in Topeka which is where the pulmonary rehab program for Topeka is located (and in great need of improvement). So if all goes well, by the time I really need a transplant there will be a place to go locally so our lives would not be completely disrupted. My dad (age 80) had a quadruple bypass and a valve replacement at KU Med - and it still felt like a long drive daily from Topeka to Kansas City to be with him, but we all dealt with it OK.

Jan C
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Jan-KS
Member

USA
77 Posts

Posted - Jan 11 2018 :  3:38:49 PM  Show Profile  Reply with Quote
Just placed an order with directhomemedical for 5 cannulas with 7 ft hoses to start out with. Some of the reviewers mentioned the same problems I have had with other brands of cannulas but stated that this one was more petite but the prongs were long and fit their nose better. which is just what I wanted. Caught them on a free shipping day too! Their interface with PayPal is funky (which may be PayPal's fault) - the link to change payment methods didn't work so I just let the transaction go through with whatever my default payment method is - now I'll need to log in to Paypal and see how I paid for this!

Jan C
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Jocopd
Member

USA
93 Posts

Posted - Jan 13 2018 :  3:00:39 PM  Show Profile  Reply with Quote
Wonder if anyone has tried the child sized cannulas? Every normal and/or soft one I have tried has blocked my nasal openings - guess I have small ones. A mask doesn't work very well and one nurse suggest to just lay it in my mouth since there are many people who cannot breath thru their nose and that is how they get the oxygen to them.
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