Hi everyone. I am a new member and while I have read a lot of what is on this site I must admit that until I was put on O2 I did not read a lot about my disease. I read more about the effects of my disease.
Now that I am O2 (10 days in) I am going slightly crazy. I did not expect to be on O2 so soon. Figured I had at least another 10 years. But that is not my point right now.
Being on O2 is driving me crazy. I cannot sleep because I keep trying to hang myself in my sleep with my tubing. Does anyone know what I can do to try and not get tangled up in my tubing. I do have an adjustable bed. Had to buy it 6 years ago when I could no longer sleep flat.
I have tried several suggestion on here but keep sliding down and getting tangled up.
Is it you that is sliding down in the bed or the tubing sliding down your face? :) Some of this sounds like mind over matter. You are afraid you will strangle yourself so that is what is uppermost in your mind.
They still make those wide stretchy headbands that we used to wear to hold our hair back (at least us females) - like in the 60's? I found that helpful if you put it in front of your ear to hold the tubing over your ear.
Once the worry and stress has lightened a bit it will become easier and soon you don't really notice it much. At least I no longer do. It doesn't even leave marks on my face anymore like it did at the beginning. I also never use the slider to slid the knot thing up under my chin, its usually down at the V. If you have it slid all the way up where it is pressing under your chin then that might be bothering you.
They do make a stand that people who use cpap machines use to route the tubing up and over their head to the stand over their bed but that is a much larger hose and not sure it would work with this small light tubing.
After what I have learned about the damage NOT being on our oxygen can do then that inspires me to make sure I do everything I can to keep hooked up. I wish you luck and that it soon works better for you.
Thanks for the idea and actually its both me and on other times my tubing. It generally wakes me up and I actually have woke up with the tubing around my neck twice already. I have only had one night where I assume I used it all night since I woke up with it in the right place. LOL
Also, I do not have it tightened under my chin as I cannot stand to have things tightly around my neck or head as it is.
I will get a headband when I go to town as that sounds very promising. Thanks so much
You can also loop it upwards or backwards over your head then put the headband on to hold that in place. That way nothing goes under your chin and the tubing can go down your back. That didn't work for me very well but I was not having much success at the beginning either.
I have been on oxygen for almost ten years and I've never had the cannula loop around my neck. If connected correctly, it will simply fall away if it comes off of your ears. The only way I can get a loop around my neck is by taking the prongs and pulling them up and over my head.
Take care of business or business will take care of you.
I have never had it around my neck either from day 1 and I cannot quite picture it,imagine you may get a lot of replies on that.I mainly sleep on my left side,with just a bit of time on my back 99 % of the time the cannula stays in place part of the tubing is on the bed and part of it is on the floor.
sslei yea I tried looping it around the top of my head and that is when it went around my neck. Did not figure it would do that so i don't wear it like that at night anymore.
Jocopd thanks for the headband idea. It works great and my cannula is staying in place now. Took a night or two to figure out the best way to wear it but the headband is working now no matter how I sleep.