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 Zephyr lung implant
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Greg-TX
Member

225 Posts

Posted - Oct 30 2019 :  6:14:30 PM  Show Profile  Reply with Quote
Has anyone had the Zephyr lung implant or know anything about it? I didn't see any other posts regarding this subject.

Greg-TX
"Alcohol"- because no great story ever started with someone eating a salad!

Dave-OH
Administrator

USA
4273 Posts

Posted - Oct 30 2019 :  8:25:08 PM  Show Profile  Reply with Quote
try searching on lung valves or just valves.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
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hapolati
Member

USA
48 Posts

Posted - Oct 31 2019 :  5:33:49 PM  Show Profile  Reply with Quote
Received five Zephyr valves in hyper-inflated lobe in July. CT scan and PFT tests were scheduled for 45 day post-procedure analysis. There was delay due to my getting tests done in WI and forwarding them to Chicago doctor/hospital.
Doctor just sent me e-mail stating that the valves still appeared in place, the targeted lobe had deflated by 40%, and my FEV1 had improved from 26% to 31%. Lobe deflation and positive changes could develop for up to six months, they say. Everyone's different.
Do I feel better, breathe easier? I clearly did during the initial 4 to 6 weeks after valves -- not dramatically, but some everyday activities became somewhat easier (washing hair, pulling a few weeds, etc.) I was grateful for the modest improvements. But then some of the old chronic fatigue and SOB seemed to return. I worried that the valves had moved or needed adjustment, as happens to some. Would I need another bronchoscopic exam in Chicago to tell? The doc's recent e-mail states that the CT scan indicates no migration movement. So I am a semi-happy camper, intent on patience (until my 6 mos. tests).
Meanwhile, I'll try to focus more on exercise, diet, and harmonica playing. No idea how much better my numbers or daily feeling might improve, but I can say no regrets and advise anyone eligible to have the valves adventure.
The Facebook group --Lung Valves for Friends -- can help direct you (though sometimes it's a bit hyper-inflated)(pun intended)

terry farley
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