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 Zephyr lung implant
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Greg-TX
Member

225 Posts

Posted - Oct 30 2019 :  6:14:30 PM  Show Profile  Reply with Quote
Has anyone had the Zephyr lung implant or know anything about it? I didn't see any other posts regarding this subject.

Greg-TX
"Alcohol"- because no great story ever started with someone eating a salad!

Dave-OH
Administrator

USA
4331 Posts

Posted - Oct 30 2019 :  8:25:08 PM  Show Profile  Reply with Quote
try searching on lung valves or just valves.

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COPD Support, Inc. http://www.copd-support.com/
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hapolati
Member

USA
51 Posts

Posted - Oct 31 2019 :  5:33:49 PM  Show Profile  Reply with Quote
Received five Zephyr valves in hyper-inflated lobe in July. CT scan and PFT tests were scheduled for 45 day post-procedure analysis. There was delay due to my getting tests done in WI and forwarding them to Chicago doctor/hospital.
Doctor just sent me e-mail stating that the valves still appeared in place, the targeted lobe had deflated by 40%, and my FEV1 had improved from 26% to 31%. Lobe deflation and positive changes could develop for up to six months, they say. Everyone's different.
Do I feel better, breathe easier? I clearly did during the initial 4 to 6 weeks after valves -- not dramatically, but some everyday activities became somewhat easier (washing hair, pulling a few weeds, etc.) I was grateful for the modest improvements. But then some of the old chronic fatigue and SOB seemed to return. I worried that the valves had moved or needed adjustment, as happens to some. Would I need another bronchoscopic exam in Chicago to tell? The doc's recent e-mail states that the CT scan indicates no migration movement. So I am a semi-happy camper, intent on patience (until my 6 mos. tests).
Meanwhile, I'll try to focus more on exercise, diet, and harmonica playing. No idea how much better my numbers or daily feeling might improve, but I can say no regrets and advise anyone eligible to have the valves adventure.
The Facebook group --Lung Valves for Friends -- can help direct you (though sometimes it's a bit hyper-inflated)(pun intended)

terry farley
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klm49
Member

USA
103 Posts

Posted - Sep 08 2020 :  6:37:02 PM  Show Profile  Reply with Quote
quote:
Originally posted by hapolati

Received five Zephyr valves in hyper-inflated lobe in July. CT scan and PFT tests were scheduled for 45 day post-procedure analysis. There was delay due to my getting tests done in WI and forwarding them to Chicago doctor/hospital.
Doctor just sent me e-mail stating that the valves still appeared in place, the targeted lobe had deflated by 40%, and my FEV1 had improved from 26% to 31%. Lobe deflation and positive changes could develop for up to six months, they say. Everyone's different.
Do I feel better, breathe easier? I clearly did during the initial 4 to 6 weeks after valves -- not dramatically, but some everyday activities became somewhat easier (washing hair, pulling a few weeds, etc.) I was grateful for the modest improvements. But then some of the old chronic fatigue and SOB seemed to return. I worried that the valves had moved or needed adjustment, as happens to some. Would I need another bronchoscopic exam in Chicago to tell? The doc's recent e-mail states that the CT scan indicates no migration movement. So I am a semi-happy camper, intent on patience (until my 6 mos. tests).
Meanwhile, I'll try to focus more on exercise, diet, and harmonica playing. No idea how much better my numbers or daily feeling might improve, but I can say no regrets and advise anyone eligible to have the valves adventure.
The Facebook group --Lung Valves for Friends -- can help direct you (though sometimes it's a bit hyper-inflated)(pun intended)




Curious how the Zephyr has worked out for you? I went to PUlmo. today and they say I am a candidate.
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hapolati
Member

USA
51 Posts

Posted - Sep 09 2020 :  12:58:44 PM  Show Profile  Reply with Quote
Update on my case....After one year, CT scan indicates 35% volume reduction in targeted hyper-inflated lobe -- a good but not great amount. PFTs indicate no great change from pre-valves numbers. My general feeling is that L was sure the valves helped during the first few months, then wasn't sure they were working as desired. Only way to check them is another bronchoscope exam, something I hesitate to do for fear of possible pneumothorax and just hatred of hospital hassles. So I'm in a "wait and watch" mode. Recommend procedure to any qualified. Much to gain, little to lose.

terry farley
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klm49
Member

USA
103 Posts

Posted - Sep 10 2020 :  06:10:18 AM  Show Profile  Reply with Quote
quote:
Originally posted by hapolati

Update on my case....After one year, CT scan indicates 35% volume reduction in targeted hyper-inflated lobe -- a good but not great amount. PFTs indicate no great change from pre-valves numbers. My general feeling is that L was sure the valves helped during the first few months, then wasn't sure they were working as desired. Only way to check them is another bronchoscope exam, something I hesitate to do for fear of possible pneumothorax and just hatred of hospital hassles. So I'm in a "wait and watch" mode. Recommend procedure to any qualified. Much to gain, little to lose.



Thanks Terry! I go for CT scan next week and then back to Pulmo. a week or so after that. I think I am going to have the procedure this winter. "Much to gain, little to lose" seems very appropriate.
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klm49
Member

USA
103 Posts

Posted - Oct 13 2020 :  6:14:14 PM  Show Profile  Reply with Quote
quote:
Originally posted by klm49

quote:
Originally posted by hapolati

Update on my case....After one year, CT scan indicates 35% volume reduction in targeted hyper-inflated lobe -- a good but not great amount. PFTs indicate no great change from pre-valves numbers. My general feeling is that L was sure the valves helped during the first few months, then wasn't sure they were working as desired. Only way to check them is another bronchoscope exam, something I hesitate to do for fear of possible pneumothorax and just hatred of hospital hassles. So I'm in a "wait and watch" mode. Recommend procedure to any qualified. Much to gain, little to lose.



Thanks Terry! I go for CT scan next week and then back to Pulmo. a week or so after that. I think I am going to have the procedure this winter. "Much to gain, little to lose" seems very appropriate.



I met with Pulmo. today to get results of my scan. They said no scaring but definitely emphysema and I am down to 31%. I discussed Zephyr with Dr. (he does the implants) and have decided to wait till next year, probably next fall after we have a vaccine for Covid-19. I have read some horror stories about the valves , especially collapsed lungs. He said he has done over 20 procedures and has had only 1 collapsed lung and it reinflated itself. It is a certainty that I am not gonna get better on my own.
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hapolati
Member

USA
51 Posts

Posted - Oct 14 2020 :  12:57:33 PM  Show Profile  Reply with Quote
Kim49...I have been following Facebook group reports on valves experiences for the last two years and have not seen the "horror stories" you mention. The estimate of chances of pneumothorax are about 25% and practically all those who did suffer that said that the valves benefit was worth it and they'd do it again. In my case, I'm not sure why I'm not feeling the benefits as I initially did and am trying to follow reports on those who had a second procedure to adjust or replace valves. Because of Covid, I'll probably wait until Spring to possibly have a bronchoscpe exam of what's going on. No "miracles"...no "horrors." Severe COPD is the horror.

terry farley
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Sandy9s
Senior Member

USA
573 Posts

Posted - Nov 01 2020 :  7:06:04 PM  Show Profile  Reply with Quote
I would certainly want to compare the newly-FDA-approved Olympus Spiration Valve System also. Always good to do the research ahead of time.
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