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 C pap
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Roadrunne98
Member

USA
294 Posts

Posted - Jan 28 2020 :  10:32:22 AM  Show Profile  Reply with Quote
My daughter wants me to ask about getting me a c pap machine to keep my co2 level down since that was what caused my problem. Has any of you heard of using it for that. I fought them in icu when they would try it on me but in 3 days they got it down from 144 to 71.

jmrommes
Contributing Member

2081 Posts

Posted - Jan 28 2020 :  11:07:32 AM  Show Profile  Reply with Quote
Usually a bi-pap or Trilogy is used to help control CO2, not a C-pap. You need the positive pressure from both directions to work with CO2. I'd ask if there's any need for you to have one at home. If your CO2 levels are chronically high, then perhaps. Most of us have high CO2 levels if we're sick enough to be hospitalized, but that doesn't mean we need help at home. Talk with your doc and learn more about YOUR situation so you know whether it would help or not or is necessary. If not necessary, you can do fine without it!

Exercise not only lets me live, it enables me to have a life.
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justsumoldguy
Member

37 Posts

Posted - Apr 06 2020 :  5:08:30 PM  Show Profile  Reply with Quote
I use a Trilogy 100 machine. Got it a few months ago. Don't be stubborn (like I was) It was the best thing I did, after getting over the fact that O2 was necessary three years ago! My first thought was I will NEVER be able to sleep, with that face mask thingamabob on my mug. The machine is absolutely silent unless you break the seal that forms on your face with the mask. The machine will beep if anything is not right. Slept like a baby the first night! Bottom line, I feel safer knowing that high CO2 will not be an issue due to poor breathing habits. FWIW your O2 line can plug right into your machine so you get O2 no matter how you breath.
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Beth - La
Member

USA
25 Posts

Posted - Jun 10 2020 :  12:34:57 PM  Show Profile  Reply with Quote
I've seen mentioned in other threads that you are on oxygen 24/7? I'm wondering if perhaps you are retaining carbon dioxide due to too much oxygen? I am only on 2l at night time, but because I am a c02 retainer, my doctor says the safest sa02 for me is between 88-92%. Since I can't read my numbers while sleeping, I am on the Trilogy 100 at night with the oxygen. I haven't felt this good in months!

I hope you find the answers needed to keep you feeling as best as you can.
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sslei
Member

177 Posts

Posted - Jun 10 2020 :  2:20:45 PM  Show Profile  Reply with Quote
I have a trilogy 200 and I would love to be on it more, when I first got it in 2016 I was able to sleep all night with it, but now using the same size small mask if I twist and turn just a little it does break the seal and makes funny noises , but I cannot lay perfectly still. Also I have to go to restroom quite often so I am up and down more so than I was before, they thought maybe a medium might work better but I have not tried that yet. I get real frustrated , they want me to use it and I have problems that need to be corrected to be able to use it more.

SandyL.
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rjh-spokane
Member

USA
65 Posts

Posted - Jun 16 2020 :  7:02:19 PM  Show Profile  Reply with Quote
I've been told that I should use the bipap also. Talking to my supplier i was told that I need to take a sleep test to prove I need it for the insurance to pay. sounded like two different types of sleep tests. Do you do these both at home? I have noticed that many times when I get leg cramps I can do deep pulse breathing, especially deep exhales with fast inhale to get rid of co2, the cramps will go away. It seems that co2 is contributing to the cramps. Any improvement will be wonderful.
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jmrommes
Contributing Member

2081 Posts

Posted - Jun 17 2020 :  11:49:00 AM  Show Profile  Reply with Quote
I think the two types of sleep tests are an overnight oximetry test, where you simply wear an oximeter and that determines your need for overnight O2; and a full-blown sleep study, where they study your sleep patterns, how many times you stop breathing, whether your breathing is compromised on the inhale, the exhale or both, and probably a whole bunch of other things I don't know about. The full-blown sleep study is usually done in a sleep center but I understand that they can be done in the home with the right equipment. I suspect the at-home alternative isn't available everywhere. So the answer to your question is "it depends": first on the type of test you're having and if it is a full-blown sleep study, whether your provider can do an at home version.

Exercise not only lets me live, it enables me to have a life.
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