COPD Support Discussion Boards Active Users: 195 / Visits Today: 239
Highest Active Users: 195
COPD Support Discussion Boards
Home | Profile | Register | Active Topics | Members | Search | FAQ
Username:
Password:
Save Password
Forgot your Password?

 All Forums
 COPD Forums
 COPD Support - COPD Information
 Retaining CO2.
 New Topic  Reply to Topic
 Printer Friendly
Author  Topic Next Topic  

Roadrunne98
Member

USA
296 Posts

Posted - Jul 13 2020 :  1:01:06 PM  Show Profile  Reply with Quote
What can I do to get rid of co2 .3 days in the icu I had that on me. Fought it every day me husband said. Is it possible the reading is going up again although the dew point is high I get sob, what can I do to help myself.

rjh-spokane
Member

USA
68 Posts

Posted - Jul 13 2020 :  4:08:16 PM  Show Profile  Reply with Quote

I've been fighting the same thing for a couple of years or more and found the advice I received in therapy the best so far. That is to use pursed lip breathing and to exhale absolutely all, and I mean all, of the air in your lungs. Then when you inhale to do it briskly through your nose. This creates a small vacuum in you lungs as they try to fill through the restriction of your nose and that seems to help the co2 to go from your blood to your lung air. This has been the only way I could get my breath back after walking as little as 50 feet.

I just started using a non-invasive ventilator and I am still trying to get it set right. I tried it for 2 nights and had to give up and the technician reset it and I have used it for two nights now. I have taken over two hours both nights to get to sleep. It still needs some tuneup. Once I go to sleep I have slept well and wake up feeling pretty good. I do not know yet how this is going to effect the co2 retention. I have been told this will help.

The ventilator is a triology 100
Go to Top of Page

jmrommes
Contributing Member

2085 Posts

Posted - Jul 14 2020 :  09:20:58 AM  Show Profile  Reply with Quote
The Trilogy is a newer machine that does much the same thing as a bi-pap but is generally much more efficient. It can be calibrated to the patient much more closely than a bi-pap, and therefore works better. Both machines are designed to help regulate the patient's breathing so as to blow off the accumulated CO2 and keep the patient comfortable by not being chronically sob.

Roadrunner, your sob has very little to do with the dew point, though that doesn't help, you sob is probably caused by a build-up of CO2. That's what the machine is supposed to help with. The Trilpgy has done an excellent job for many patients. Works with the techs to get it properly calibrated and then use it. You'll feel a lot better!

Exercise not only lets me live, it enables me to have a life.
Go to Top of Page

skhill
Member

USA
239 Posts

Posted - Jul 30 2020 :  9:17:27 PM  Show Profile  Reply with Quote
Medicare would not pay for my Trilogy said he was a ventilator and they would not pay for it.
Go to Top of Page

jmrommes
Contributing Member

2085 Posts

Posted - Jul 31 2020 :  10:18:39 AM  Show Profile  Reply with Quote
You probably want to check with your doc and the provider of the machine. Medicare payment often depends on use of the right billing codes. That may be part of the problem and that can be fixed fairly easily. Most hospital billing departments know those codes backwards and forwards and could help.

If that doesn't help, call Medicare and get them to tell you or your representative exactly what the problem is. The Trilogy is paid for by Medicare for many patients. You need to find out why not you and then work with your docs to get that problem fixed.

Exercise not only lets me live, it enables me to have a life.

Edited by - jmrommes on Jul 31 2020 10:21:00 AM
Go to Top of Page

rjh-spokane
Member

USA
68 Posts

Posted - Aug 01 2020 :  02:12:12 AM  Show Profile  Reply with Quote
Skhill, I found just the opposite of what you experienced. Medicare paid for mine and my insurance paid the portion not covered by medicare. If I had got a c-pap or b-pap they would have required a sleep test but for a ventilator they just prescribed to my provider and all was accepted. Do as Jean suggests and retry.
Go to Top of Page

skhill
Member

USA
239 Posts

Posted - Aug 01 2020 :  2:22:13 PM  Show Profile  Reply with Quote
Yes thank you. I have Anthem that is a advantage program. I already talked to them and they said because it said it was a ventilator and I was not in the hospital they would not pay for it. They said to tell the doctor to order me a bipap or a cpap. I said this also works like a bipap only more sophisticated. I told her it was to help push the old air out of my lungs to make room for new air so I can breathe and sleep better. I will call again. Would it help to call Medicare or do I have to keep calling Anthem? How can Medicare help since I go through Anthem for my medicare benefits? I already told my doctor and he just shrugged and well did nothing.
Go to Top of Page

jmrommes
Contributing Member

2085 Posts

Posted - Aug 01 2020 :  3:27:35 PM  Show Profile  Reply with Quote
If your doc's not willing to go to bat for you, there may not be much of anything you can do. You might want to call your state's SHIP office to be sure you understand the relationship between Anthem and Medicare so you know who to keep working on and get a feel for whether it's worth it to keep pushing. Anthem clearly has rules and the only issue with Medicare would be if they're consistent with Medicare. You could ask Anthem for a copy of those rules regarding the Trilogy in writing and then call Medicare to see if Anthem's stance is consistent with Medicare's rules for the advantage plans and the Trilogy.

A bi-pap will do the same thing as the Trilogy, it's just not as sophisticated a machine. So if all else fails, go with the bi-pap.

Exercise not only lets me live, it enables me to have a life.
Go to Top of Page
   Topic Next Topic  
 New Topic  Reply to Topic
 Printer Friendly
Jump To:
COPD Support Discussion Boards © Copyright COPD-Support, Inc. Go To Top Of Page
Snitz Forums 2000