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 O2 Support & Lung Function Testing
 Trilogy 100
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Gecko10
Member

61 Posts

Posted - Sep 16 2020 :  12:13:14 PM  Show Profile  Reply with Quote
Anyone using a Trilogy 100? If so will you share your thoughts about it? I am getting one next week.

Thanks

jmrommes
Contributing Member

2159 Posts

Posted - Nov 07 2020 :  12:06:53 PM  Show Profile  Reply with Quote
I'm glad to hear it worked for you. The calibration specifically to your issues seems to have worked well, and if you can get the humidifier issues resolved, you will be in a great place!

Exercise not only lets me live, it enables me to have a life.
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klm49
Member

USA
141 Posts

Posted - Nov 13 2020 :  06:53:25 AM  Show Profile  Reply with Quote
quote:
Originally posted by MDC

well lowering to 430 helped but did not allivate the problem of anxiety or hard to breath normally ( through nose). I still have some fullness feeling in lungs but much better. Last night I woke at about 4 am and turned off machine, and just slept with cannula as usual and when I got at 6 am I felt MUCH BETTER!! No anxiety, no bloating.

Going to call Lincare this morning and see about getting another adjustment. Not that it matters but I am wearing my cannula at regular setting with full mask over it. Other option is to plug 02 line from concentrator into mask. My reasoning for this method was in case I needed to get up at night. I just turn of Trilogy and take off mask and go to bathroom or get water then turn machine back on after I have replaced mask.

Guess I need to go back and delete some posts to keep from cluttering up board.

Mike


According to what I read you can connect O2 directly to your Trilogy machine.
https://core-philips.bravais.com/api/shared/rZ5UhPxliJ9i2G4Cuf6u/content/
I don't use one, was just curious about machine as I have Emphysena and am on CPAP
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gms
Member

USA
159 Posts

Posted - Nov 14 2020 :  10:29:46 AM  Show Profile  Reply with Quote
Gecko, MDC, did either of you use a cpap before being prescribed a Trilogy? Was there any type of testing required? I'm asking because in the past month or so my SOB has gotten to the point where I'm using Albuterol in my nebulizer every 4 to 6 hours during the day... and waking up at night after 4 hours or so to hit the nebulizer again... then back to sleep for another 4 hours. My doctor has changed my Advair to Symbicort which seems to work better than the Advair but hasn't changed my need for the nebulizer. Thinking the Trilogy is something I might want to talk to my Doctor about... but the thought of going somewhere for any type of testing gives me pause what with the Covid numbers on a the rise.
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jmrommes
Contributing Member

2159 Posts

Posted - Nov 15 2020 :  8:19:43 PM  Show Profile  Reply with Quote
Mike, I think your pulmo must really know the Medicare system well, because what she did isn't typical. Under almost all circumstances, a Trilogy requires some testing to prescribe, though I'm sure there must be other ways to do it and your doc know them. Maybe you could get your doc to talk to Mikes? :):) Sort of kidding, but not quite. There is a science to medicare codes and Mikes's doc has it down pat.

Exercise not only lets me live, it enables me to have a life.
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Jocopd
Member

USA
265 Posts

Posted - Nov 16 2020 :  09:32:44 AM  Show Profile  Reply with Quote
It's a mystery how some people can get things while others cannot. For example the Inogen. Half the people I talk to that had one have no idea how they got it and the other half purchased it themselves because their insurance would not cover one.

And they have all had all the various medicare, medicare advantage and medi gap policys and one even had private insurance.

You try asking the insurance company and they say it's how the doctor prescribes it or just gives you the run around and the doc says they are using the right code to prescribe it but you still can't get one.

You call Medicare and they say Inogens are covered but its up to the insurance carrier. So back to step one.
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jmrommes
Contributing Member

2159 Posts

Posted - Nov 16 2020 :  10:38:45 AM  Show Profile  Reply with Quote
This is a great example of our health care system at work. It's great if you get what you want and need, and terrible if you don't. Want to change it? Talk with your senators and representatives.

Exercise not only lets me live, it enables me to have a life.
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MDC
Senior Member

548 Posts

Posted - Nov 16 2020 :  2:08:36 PM  Show Profile  Reply with Quote
Sorry to make people upset.

Talk to DME companies that carry the Trilogy and ask which Doctors prescribe them. Most Doctors (it seems) are more interested in $ than helping patients, I got a Good one that puts patients first and goes the extra mile to fight for them. I have had all the sleep tests with no luck. Refused transplant evaluation. She took over.



Your talent is God's gift to you. What you do with it is your gift back to God.
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jmrommes
Contributing Member

2159 Posts

Posted - Nov 16 2020 :  8:29:37 PM  Show Profile  Reply with Quote
Mike, I wasn't upset; just making an observation.

While you may certainly be right about some docs being more interested in $$ than their patients' welfare, one of the big problems, at least according to my DME, is that pulmonologists don't know about what's available, like the Trilogy. They've been trying to get into a couple of the big pulmonology practices here to tell them about the Trilogy and how well it works, and can't make a dent. I was surprised the manufacturers don't market directly to docs, but there's no point in that because the DME's are the ones who buy the machines and get them to patients. I always find it fascinating (if frightening) to realize that I know more about the equipment available to patients than the docs do.

Exercise not only lets me live, it enables me to have a life.
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gms
Member

USA
159 Posts

Posted - Nov 16 2020 :  9:28:33 PM  Show Profile  Reply with Quote
quote:
Originally posted by jmrommes

I was surprised the manufacturers don't market directly to docs, but there's no point in that because the DME's are the ones who buy the machines and get them to patients. I always find it fascinating (if frightening) to realize that I know more about the equipment available to patients than the docs do.



I'm guessing that the Pharmaceutical companies have been having similar problems with marketing some of their drugs to the various doctors which is why they are taking their drug campaigns direct to us with their TV and Radio ads.

I think Mike's suggestion about calling your DME is a good suggestion. I think I'd take it a step further and ask the DME what your insurance company needs to see in order to approve the equipment you want/need. I'm sure they have seen enough approvals and rejections to have learned what the various companies want to see...
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MDC
Senior Member

548 Posts

Posted - Nov 17 2020 :  09:00:28 AM  Show Profile  Reply with Quote
(This is the basis for therapy as my sleep studies ruled out cpap and bi-pap)

Prior to initiating therapy, sleep apnea
and treatment with CPAP has been
considered and ruled out.
(Note: Formal
sleep testing is not required if there is
sufficient information in the medical record
to demonstrate that the patient does not
suffer from some form of sleep apnea
[obstructive sleep apnea (OSA), central
sleep apnea (CSA) and/or complex sleep
apnea (CompSA)] as the predominant
cause of awake hypercapnia or nocturnal
arterial oxygen desaturation).

https://www.resmed.com/us/dam/documents/articles/1010293_RAD_Guidelines.pdf

https://arhealthcare.com/sites/default/files/2017-06/AVAPS-AE%20Mode%20Trilogy%20100_0.pdf


Maybe this will help someone.

God Bless,
Mike

Your talent is God's gift to you. What you do with it is your gift back to God.

Edited by - MDC on Nov 29 2020 08:48:25 AM
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MDC
Senior Member

548 Posts

Posted - Nov 27 2020 :  08:43:00 AM  Show Profile  Reply with Quote
So far so good. Look forward to sleeping..lol I have seemed to get over a lot of the anxiety I had upon waking.

It will be interesting to get enough data for my Dr to analyze.

Your talent is God's gift to you. What you do with it is your gift back to God.
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Sandy9s
Senior Member

USA
629 Posts

Posted - Dec 24 2020 :  9:57:52 PM  Show Profile  Reply with Quote
Does anyone have the Trilogy just for during the day (and not to sleep)? Reading about the Trilogy 100 BiPap talks about its use for having a hard time breathing during the day also. Just wondering.....

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