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klm49
Member

USA
131 Posts

Posted - Jan 25 2021 :  10:16:33 AM  Show Profile  Reply with Quote
I started this thread:
http://copdforum.portalone.us/topic.asp?TOPIC_ID=5661
which apparently belongs here.
I see Pulmo. next week but I think my getting O2 is very likely.
This morning I contacted my DME to inquire about what they might supply.
1. They do not supply portable concentrators as Medicare doesn't reimburse enough for one.
2. They will supply a stationary concentrator and an M-system portable tanks (6) which they will refill/replace once a week at my home. They use Respironics or Airsep concentrators.
I asked about filling from a concentrator and he told me that it usually takes 8-10 hrs. to fill a tank and the O2 is not as pure.

I use this DME for my CPAP equipment and supplies. I may give another DME in the area a call and see what they have to say.

Edited by - klm49 on Jan 25 2021 10:32:49 AM

gms
Member

USA
149 Posts

Posted - Jan 25 2021 :  10:46:29 AM  Show Profile  Reply with Quote
Interesting... I didn't think DME suppliers were able to pick and choose what equipment they would supply as contractors for Medicare. It was my understanding that if they were DME suppliers for oxygen to Medicare patients than they were required to supply what the doctor ordered instead of what was cost effective for them.
I would suggest you contact Medicare @ 1-800-mdicare, or your local State Health Insurance Assistance Program (SHIP) for answers.
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jmrommes
Contributing Member

2135 Posts

Posted - Jan 25 2021 :  10:58:54 AM  Show Profile  Reply with Quote
The DME's responsibility to Medicare is to provide O2 for in-home use and some system for out and about. What they can/will provide as far as a portable system is up to them. So they have the right to say what they will provide under the Medicare rules. Many providers will offer a limited selection of POCs. Some patients have had success by having their docs prescribe a specific POC, but the provider isn't obligated to do so. The patient always has the right to choose a different provider (although that can be very difficult at certain times during a five year contract).

In some states, CA in particular, there's a major problem finding enough home O2 equipment to send people home from the hospital if they need O2. That's probably going to continue to be a problem for the foreseeable future, and getting equipment may become harder.

Exercise not only lets me live, it enables me to have a life.
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klm49
Member

USA
131 Posts

Posted - Feb 03 2021 :  6:49:26 PM  Show Profile  Reply with Quote
quote:
Originally posted by klm49

I started this thread:
http://copdforum.portalone.us/topic.asp?TOPIC_ID=5661
which apparently belongs here.
I see Pulmo. next week but I think my getting O2 is very likely.
This morning I contacted my DME to inquire about what they might supply.
1. They do not supply portable concentrators as Medicare doesn't reimburse enough for one.
2. They will supply a stationary concentrator and an M-system portable tanks (6) which they will refill/replace once a week at my home. They use Respironics or Airsep concentrators.
I asked about filling from a concentrator and he told me that it usually takes 8-10 hrs. to fill a tank and the O2 is not as pure.

I use this DME for my CPAP equipment and supplies. I may give another DME in the area a call and see what they have to say.



I had an overnight Sleep Titration last Sunday night to get a Bipap and they had to put me on O2. I Went to the Pulmonologist today. They did xray, lungs clear now. Explained about my SOB and desaturations plus my recent Sleep Titration. I did a 6 minutes walk test and they are prescribing O2 for me. I am sure I will get what the DME told me when I called last week. I guess we wait for Medicare approval now. My breathing seems to be much worse in the afternoon/evening.
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Jocopd
Member

USA
261 Posts

Posted - Feb 05 2021 :  09:39:46 AM  Show Profile  Reply with Quote
They do supply a portable. If your prescription calls for one. Ask your doctor what he prescribed so you know if your getting both.

The issue here is most everyone refers to portable as Inogen. Yes, an Inogen is portable but its not the only portable. Like Kleenex is not the only tissue.

The tanks that you will get are "portable" You can carry them in a shoulder pouch or backpack. And that is all the insurance is required to supply for a portable. They are not required to supply you with an Inogen.

Depending on your prescription you will get at least a stationary for use around the house and/or when sleeping.

I did not qualify for portable for about 4 years and then I needed one to go shopping etc. So my doctor adjusted my prescription and I got the small tanks you carry in a shoulder bag.

I would not suggest bothering to get a home fill concentrator to fill the small tanks at home. Its much easier to just call the DME and have them bring out your portable tanks when you need them. Its an extra issue you don't need.

Also don't forget to ask for your hoses, swivels hose connectors or anything else you might need at least once a month.

I get the 4 foot hose instead of the 7 for my portable tank use, it fits better when I am moving in the stores.


Edited by - Jocopd on Feb 05 2021 09:42:24 AM
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Sandy9s
Senior Member

USA
606 Posts

Posted - Feb 09 2021 :  8:25:12 PM  Show Profile  Reply with Quote
I'm sorry I did not follow everything in this thread. But this is what I use:

Home Concentrator with about 80' of hose.......set at 3L until I take a shower. Then it's raised to 5L

Black Rolling Bag with nice pulling handle. Holds a "D" tank, with a 7' hose. Regulator is an Easy Pulse 5+6. This means 5 settings at Pulse; 6 settings at Continuous.

Smaller Black Rolling Bag with nice pulling handle. Holds a "C" tank (can also hold 2 - C tanks, but that get too heavy for me.) I also have another Easy Pulse 5+6 Regulator on this portable unit.

Baby Black Bag -- holds a "B" tank -- but the bag is a carry one with handles........I call it my Baby Tank -- I grab it walking out the door to go down the driveway -- has a Continuous 2 or several Pulse Settings in this regulator. Can't really use it on continuous or it would run out pretty quickly.

Because of the Easy Pulse 5+6 Regulators, I no longer have any trouble making my tank last as long as I want it to last. I usually "do" Continuous 3L walking into the place, then go to Pulse 3L while sitting. If I do a lot of talking, I have to go back to Continuous 2 or 3L...........but I can really control the speed at which the oxygen runs out with this regulator.

Hope this helps.
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Dave-OH
Administrator

USA
4354 Posts

Posted - Feb 10 2021 :  12:17:19 AM  Show Profile  Reply with Quote
When on O2 24X7, I had a home unit that I ran at about 2 liters at night, and a POX from Phillips, as Simply Go that can do 2 liters. I own the Simply Go. After my home O2 study, they took the home unit back. Seldom use O2 at night, but when I fly or go to higher altitudes, I use the Simply Go.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info


My Site: http://lungresources.com
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jmrommes
Contributing Member

2135 Posts

Posted - Feb 10 2021 :  10:15:09 AM  Show Profile  Reply with Quote
I use liquid at home, with a SmartDose or GoLox portable LOX units.

When I travel, I have a concentrator (because I can't get LOX when traveling, and stopped asking for it 5 or 6 years ago) and C-tanks using a Smart-Dose conserver.

On a plane and in airports, I use an Inogen G-5.

Lincare supplies everything except the G-5. They have treated me really well, including the travel.

Exercise not only lets me live, it enables me to have a life.
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Sandy9s
Senior Member

USA
606 Posts

Posted - Feb 11 2021 :  12:30:12 PM  Show Profile  Reply with Quote
A couple of posts up, I listed all of my 24/7 oxygen equipment which I use. I forgot about my 2 - Simply Go's!!

I have 2 - Simply Go's because the 1st one had to go in for repair (again) and so I decided to buy another one to always have a spare. As it turned out, the new one needed a repair after only 6 months (it is in repair now), so that I was able to use the 1st unit! I was glad I had two of them.

I always use my Simply Go's at 2L in the car -- coming and going from wherever. That way I don't use up the oxygen in the portable tanks just in traveling. A car connection allows it to be connected to the car's electrical system......or whatever you call it.

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Dave-OH
Administrator

USA
4354 Posts

Posted - Feb 11 2021 :  11:55:05 PM  Show Profile  Reply with Quote
Yes, that is a nice thing about Simply GO, you can use it and charge it at the same time off the car.

Dave, Forum Administrator
COPD Support, Inc. http://www.copd-support.com/
Your source for peer support and COPD Info


My Site: http://lungresources.com
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klm49
Member

USA
131 Posts

Posted - Feb 26 2021 :  4:03:16 PM  Show Profile  Reply with Quote
After 3+ weeks from doing my 6 minute walk test I finally have my Oxyhen equipment.
I have an Air Sep Concentrator and 6 small O2 tanks with a conserving regulator (not sure of brand yet).
Concentrator is not near as noisy as I imagined. I think the hard part will be getting the cat to leave the tubing alone!
So the adventure begins!
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Jocopd
Member

USA
261 Posts

Posted - Feb 27 2021 :  12:24:42 PM  Show Profile  Reply with Quote
quote:
Originally posted by klm49

After 3+ weeks from doing my 6 minute walk test I finally have my Oxyhen equipment.
I have an Air Sep Concentrator and 6 small O2 tanks with a conserving regulator (not sure of brand yet).
Concentrator is not near as noisy as I imagined. I think the hard part will be getting the cat to leave the tubing alone!
So the adventure begins!



That's a good set up. The portable is not an Inogen that you probably wanted but still those little tanks are what I prefer. The most common regulator/conservator given out is a Bonsai to go on those tanks.

Do they want you to call when you need more tanks? If so don't forget that 4 tubing are covered each month free. But you have to ask for them. I like to use the 4ft ones on my little tanks when shopping. Now and then I ask for the 25 or 50 foot ones for my home unit.

Basically all supplies are covered. So that includes tubing swivels and those little rubber washers that go on your regulator/conservator.

You can also have them replace the bag that you use to carry the little tanks in if it gets ripped or stained.

Oh and try a bitter apple spray on your hoses to repel the cat.

Edited by - Jocopd on Feb 27 2021 12:25:27 PM
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klm49
Member

USA
131 Posts

Posted - Feb 27 2021 :  2:10:36 PM  Show Profile  Reply with Quote
quote:
Originally posted by Jocopd

quote:
Originally posted by klm49

After 3+ weeks from doing my 6 minute walk test I finally have my Oxyhen equipment.
I have an Air Sep Concentrator and 6 small O2 tanks with a conserving regulator (not sure of brand yet).
Concentrator is not near as noisy as I imagined. I think the hard part will be getting the cat to leave the tubing alone!
So the adventure begins!



That's a good set up. The portable is not an Inogen that you probably wanted but still those little tanks are what I prefer. The most common regulator/conservator given out is a Bonsai to go on those tanks.

Do they want you to call when you need more tanks? If so don't forget that 4 tubing are covered each month free. But you have to ask for them. I like to use the 4ft ones on my little tanks when shopping. Now and then I ask for the 25 or 50 foot ones for my home unit.

Basically all supplies are covered. So that includes tubing swivels and those little rubber washers that go on your regulator/conservator.

You can also have them replace the bag that you use to carry the little tanks in if it gets ripped or stained.

Oh and try a bitter apple spray on your hoses to repel the cat.



Jocopd, Thanks for the reply.
Yes if I call by Thursday they will deliver tanks on Fri.
So far so good. Concentrator worked fine overnight and SPO2 was better. I have a Contec recording pulse oximeter. I'm not sure I need the O2 24x7. I definitely do if I am up moving around but sitting watching tv my spo2 stays 88 up to about 92.
I went out this morning with the bag and bottle and couldnt really find a comfortable way to carry bag. It is meant to be a shoulder bag I am sure. So far after I told the cat to leave the tubing alone he has. I think he has finally figured "no" out.
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Jocopd
Member

USA
261 Posts

Posted - Feb 28 2021 :  11:39:37 AM  Show Profile  Reply with Quote
I adjusted the straps on my bag so it fits over my shoulder but the bag hangs down almost like an old gunslinger would have his holster down the thigh but a little higher. Between that and my shoulder strap purse I get a little lop sided. Tried carrying one of them on the other side but just not used to that.

You can go cross body with the strap or use it on your back like a backpack. I have long hair so I don't do the backpack way. Might try cross body someday but when I go shopping I like to put it in the top carry place on top of my purse. Just so no one can get into my purse while shopping.

I hardly ever use the little handle to carry it, except for getting in and out of my truck.

Glad its working out well for you. I am so paranoid about organ/brain damage that I use 90% as my cut off. Anything below that and I hook up.
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klm49
Member

USA
131 Posts

Posted - Mar 07 2021 :  07:21:28 AM  Show Profile  Reply with Quote
quote:
Originally posted by klm49

quote:
Originally posted by Jocopd

quote:
Originally posted by klm49

After 3+ weeks from doing my 6 minute walk test I finally have my Oxyhen equipment.
I have an Air Sep Concentrator and 6 small O2 tanks with a conserving regulator (not sure of brand yet).
Concentrator is not near as noisy as I imagined. I think the hard part will be getting the cat to leave the tubing alone!
So the adventure begins!



During all this adventure with getting the O2 from my Pulmo. I had a regular scheduled appt. with my Heart Dr. and she sent me for a Nuclear stress test which apparently showed I may have some blockage and they want to do an Angiogram and possibly stents. She explained to me that this could be causing some of my SOB which seems to make sense to me. I am in the process of scheduling the procedure.

That's a good set up. The portable is not an Inogen that you probably wanted but still those little tanks are what I prefer. The most common regulator/conservator given out is a Bonsai to go on those tanks.

Do they want you to call when you need more tanks? If so don't forget that 4 tubing are covered each month free. But you have to ask for them. I like to use the 4ft ones on my little tanks when shopping. Now and then I ask for the 25 or 50 foot ones for my home unit.

Basically all supplies are covered. So that includes tubing swivels and those little rubber washers that go on your regulator/conservator.

You can also have them replace the bag that you use to carry the little tanks in if it gets ripped or stained.

Oh and try a bitter apple spray on your hoses to repel the cat.



Jocopd, Thanks for the reply.
Yes if I call by Thursday they will deliver tanks on Fri.
So far so good. Concentrator worked fine overnight and SPO2 was better. I have a Contec recording pulse oximeter. I'm not sure I need the O2 24x7. I definitely do if I am up moving around but sitting watching tv my spo2 stays 88 up to about 92.
I went out this morning with the bag and bottle and couldnt really find a comfortable way to carry bag. It is meant to be a shoulder bag I am sure. So far after I told the cat to leave the tubing alone he has. I think he has finally figured "no" out.

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gms
Member

USA
149 Posts

Posted - Mar 07 2021 :  1:24:38 PM  Show Profile  Reply with Quote
quote:
Originally posted by klm49


During all this adventure with getting the O2 from my Pulmo. I had a regular scheduled appt. with my Heart Dr. and she sent me for a Nuclear stress test which apparently showed I may have some blockage and they want to do an Angiogram and possibly stents. She explained to me that this could be causing some of my SOB which seems to make sense to me. I am in the process of scheduling the procedure.



Be sure and ask your Heart Dr. if they are going to use the groin or left wrist to do the Heart Cath... and push for the wrist, even if it means going to a different facility/Doctor to have it done. I've had two done in the groin and three in the wrist and would never, ever want to have another done in the groin.

While both methods are fairly simple and straight forward, recovery time for the wrist is like 30 min just hanging out... but recovery for the groin is around 4 hours... where the first 15 to 30 min is constant pressure by a nurse to the groin artery, followed by at least 2 to 3 hours of zero movement... followed by several days of a large bruise.

With the wrist, they put a pressure bandage on the incision while your still on the table and you hangout in recovery to make sure it doesn't leak and the meds have cleared your body.

They can do an angioplasty and/or place stents thru either the wrist or groin.

And it's a pretty cool procedure. You will be awake for everything, except the initial cut and sheath placement, and get to watch on the screens as they thread the catheter thru the arteries, inject dye and do the angio or stent placement if needed.

Not all Doctors do their own procedures... but mine does and we had a great conversation while he was doing it, as he pointed out the blockages and explained the stent placement.
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klm49
Member

USA
131 Posts

Posted - Mar 08 2021 :  2:51:26 PM  Show Profile  Reply with Quote
quote:
Originally posted by gms

quote:
Originally posted by klm49


During all this adventure with getting the O2 from my Pulmo. I had a regular scheduled appt. with my Heart Dr. and she sent me for a Nuclear stress test which apparently showed I may have some blockage and they want to do an Angiogram and possibly stents. She explained to me that this could be causing some of my SOB which seems to make sense to me. I am in the process of scheduling the procedure.



Be sure and ask your Heart Dr. if they are going to use the groin or left wrist to do the Heart Cath... and push for the wrist, even if it means going to a different facility/Doctor to have it done.



Thanks GMS, sadly my Heart Dr. only does the procedure via the groin according to his Nurse. When I see him for the procedure on 3/29 in person I will definitely ask him why not. I will look into changing Dr.'s after I have this one done. Hopefully whatever he does improves my SOB on exertion.
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Sandy9s
Senior Member

USA
606 Posts

Posted - Mar 14 2021 :  4:51:53 PM  Show Profile  Reply with Quote
After asking my Doctor if he could do the Angiogram through my wrist, he said No, but that he would recommend another Doctor who does. I now have an appointment to see that Doctor to schedule the Angiogram for looking at my Carotid Artery and perhaps placing a stent in it -- through the wrist.

My reason for going through the wrist is that I have so many coughing spells per day that I could not possibly "lay still" for 4 hours after getting a groin insertion. I MUST sit up to cough!!!!!

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klm49
Member

USA
131 Posts

Posted - Mar 31 2021 :  06:33:47 AM  Show Profile  Reply with Quote
I had the Angiogram Monday and the hardest part was driving to/from Dallas! The good news is the Heart dr. said there is no blockage and I have veins to be envied! He said the test that led to this was a "false positive". As bad as my diet has been over the years I felt I would have blockage for sure. I guess the bad news as it were is that my SOB mainly on exertion is from my emphysema.
edit
Honestly I was hoping they would put stents in and it would solve my breathlessness on exertion. I am still considering the Zephyr valaves my Pulmo. offered me which he sdays will help some with my breathing.

Edited by - klm49 on Apr 03 2021 07:43:29 AM
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