My husband has been referred to Tampa General for pre transplant evaluations. They also sent us home with a list of tasks that we must complete. We have actually completed almost all appts. Yesterday he had bone density scan and it came back showing osteoporosis. He is very nervous is will affect the outcome of the transplant.
We go to Tampa General the first week of April for all the testing that must be done. I can't go in with him because of the COVID.So he is a nervous wreck.
Would really love to hear some positive stories right now my friends!
I went through the testing years ago. Almost did 2 passes. One here, one at the center in Virginia. No big deal. I built this site afterwards. A little out of date, but it may help. I went through the prelim 3 years ago, but nether time have I been transplanted. My numbers after long illness recovered.
tleeves —sorry for the late response. I haven’t visited the site in a while. Hi my name is Paul, live in Utah. IF you want you can read my “ story” my user name Sokcap48 and it was started some 5 years ago. About the evaluation-it can be a trying experience, but the people-Nurses and Doctors are great at what they do and they will walk him and you through every step. I am wishing you the best. I was blessed with a double lung transplant 9-30-16 and have never looked back. Adjustments YES all very manageable. I am not sure I can send you a PM since you are so new but I will try. Best wishes. I will check back in a day or so.
Paul-Ut Double lung transplant 9-30-16 Lung in a Box recipient The Journey Continues.